Hysteroscopy referral

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Hi

I’m 51, following 3-4 years of highly irregular periods where I’d go 8-9 months with nothing then get one, I’m now in the 5th month of constant bleeding. Sometimes so heavy I can’t leave the house, sometimes light so I only need a liner but always bleeding.

i had a Tv scan (very traumatic) showing 8mm endometrium thickness and a polyp and was referred for hysteroscopy. I’ve refused the 2 week cancer referral appointment as it’s without anaesthetic and due to incidents in my past I won’t even have a smear test. 

I've been told I have to wait 6 months and the support and urgency has evaporated, as if I’ve personally offended the hospital by refusing a traumatic invasive procedure which, in my mind, is akin to consenting to being medically r*ped. I have got obvious issues with anything gynae but am also terrified in case it is anything bad. 

I feel abandoned but just as scared of any gynae procedure as I am of what might be wrong. 

  • Dear Yoko,

    Thank you for getting in touch with Macmillan Cancer Support and the Online Community. My name is Gillian and I’m one of the Cancer Information Nurse Specialists on the Macmillan Support Line.

    I am sorry to hear about your ongoing gynaecological symptoms, what you’re experiencing sounds incredibly distressing, and it’s completely understandable that you feel anxious about both the bleeding and the procedures being suggested.

    Firstly, I want to reassure you that irregular bleeding and the presence of a polyp do not automatically mean cancer. Polyps are very often benign, although they still need assessment because they can cause prolonged or unpredictable bleeding.

    Given your past experiences, anything involving intimate examinations can feel threatening and traumatising. This is valid, and your emotional wellbeing should be taken seriously by your healthcare team.

    You may wish to ask your GP whether a rapid referral into a service offering hysteroscopy under general anaesthetic (GA) is possible, given the impact of your ongoing symptoms and your difficulties with outpatient procedures due to your trauma history.

    Many NHS trusts offer hysteroscopy under sedation or GA for people with a trauma history, severe anxiety, or pain sensitivity. You are not unusual in needing this, though it sometimes requires a different referral pathway.

    While you wait, your GP can still help with managing the heavy bleeding there are medications that may help reduce or stabilise it and they can also discuss emotional support options if this would be helpful.

    I hope this information is helpful. You can always call one of our nurses directly if you want to talk over your concerns or require any further support.

    Best wishes 

    Gillian,

    Cancer Information Nurse Specialist 

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or email us. 

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