Hello, i am 12 months post maxilectomy and neck dissection and removal of septum, chemo/radio ended March 2025, im doing well but at times still experience overwhelming fatigue, made worse by insomnia, ive read on her about an Untire app, but its asking for a code, do you know what the code is? Many thanks Paula
Hi PsuLaK,
My name is Alison and I am one of the Cancer Information Nurses with Macmillan Cancer support. Thank you for getting in touch with us and I hope you find the online community a helpful and supportive environment.
I’m really glad to hear you’re doing well overall after everything you’ve been through. Twelve months post‑maxillectomy, neck dissection, septal removal and chemoradiotherapy is still very early in recovery for many people, and the combination of overwhelming fatigue and insomnia is unfortunately really common. You're certainly not alone in this.
I have had a look at the Untire App code you mentioned
The Untire app (for cancer‑related fatigue) normally doesn’t require a code for individual users.
A code is only needed if:
You’re joining through a hospital or research study, or you’ve been given access via a charity or organisation offering it for free.
For most people, downloading it via the App Store or Google Play lets you register and start using it without any special access code.
If the app is specifically prompting for a “program code” during signup, it usually means:
You’ve somehow ended up on the ‘invite/organisation access’ page instead of the general sign‑up page, or
The app is expecting you to choose “individual user / self‑paid access” instead of “organisation code”.
What you can try the following steps Paula
While you’re sorting Untire out, these may also help:
On our website we have information about fatigue and ways of coping that you might find helpful to read.
Have a look Paula at the links below
Your treatment team are the best people to help find the cause of the fatigue. Your doctors at the hospital or clinical nurse specialist can organise blood tests to find out if you have low levels of red blood cells, or low levels of other chemicals in the blood. They can also assess whether any medicines could help to improve your energy levels: for example, a low dose of steroids. The treatment team or your GP can also organise any other tests that might help to find the cause. They can also refer you to a dietitian for advice on the best foods to have in your situation, so that you have the most nutrition in an easily absorbable form. We have some information on our website about a building up diet and nutritional supplements that might help.
Kind Regards
Alison, Cancer Information Nurse Specialist
You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email.
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