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My wife has CUP - I am not finding many patient experiences

Yakmanb6d758
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  • 44 subscribers
  • 139 views

Hi

I am new to the community and would be interested to hear how other patients with CUP have progressed.

One of my biggest fears is of a very rapid decline occurring even though my wife has responded well to chemo. I find my self second guessing what will happen next. I know I should try to live in the present as much as possible but I would like to,understand possible scenarios for the future.

I also know that in general the prognosis for CUP is poor and there may not be very many/any truly positive things to say.

  •  Hi Yakmanb6d758,

    Thanks for getting in touch and a warm welcome to the Online Community. I’m Heidi one of the Cancer Information Nurses here on the Macmillan Support Line. I can see you have joined the Unknown primary cancer forum and I hope you are finding it supportive.  

    I am pleased to hear that your wife has responded well to chemotherapy. It is understandable however to worry about the future, uncertainty can be one of the hardest emotions to deal with.  

    Prognosis will always depend on many factors, this might include general health and fitness, response to treatment, and where or how widespread the cancer might be. We would always advise talking to your wife’s specialist team for individual advice as general statistics may not reflect this.   

    In terms of how your wife’s CUP may progress and what to expect, this is difficult without understanding more about her diagnosis and treatment plan. It is important that you feel comfortable and confident asking her hospital team as many questions as you need to, and you are reassured about how you will both be supported.   

    Connecting with organisations and forums can put you in touch with others that understand, and can be hugely supportive. Whilst they can help you to feel less alone, be mindful that other people’s situations and experiences may be very different from your wife’s.   

    Dealing with cancer can be a very emotional time and you might find it helpful to read our web pages about emotional support. You can also check our webpage to find details of support and information organisations in your area. 

    Sometimes it helps to talk things through so please don’t hesitate to contact us on 0808 808 0000, we are here every day from 8am to 8pm and would always welcome your call.   

    You sound like an amazing support, remember to look after you too. Please don’t hesitate to get in touch again if we can support you further. 

    Best wishes 

    Heidi 

    Cancer Information Nurse Specialist  

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or email us.  

    Ref/ LZD/HC 

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