Disclaimer

Although we take care to ensure accuracy, Macmillan Cancer Support does not accept liability for the information and materials provided or referenced in Ask an Expert or for any errors or omissions in them, or for third-party information or services such as other websites we may link to. The information and materials provided or referenced in Ask an Expert are for information purposes only and are not intended to be legal, financial or medical advice or opinions. If you need more details on your rights, please contact a financial, legal or other appropriate adviser.

We recommend that you consult your doctor if you are concerned about your health. Any You should not rely on any information and materials provided or referenced in Ask an Expert including by our Experts as they are not a replacement for advice, diagnosis or treatment from your medical team, and our Experts cannot provide a second opinion to that of your medical team.

Your question can be read by others – so please don't post your contact details or any other information that could personally identify you. Please read our Terms and Conditions and Community Guidelines for more details.

Secondary now in liver scared frightened

Deedee12345
  • 1 reply
  • 45 subscribers
  • 149 views

Hi my name Denise I’m 58 years old I’ve been on palbociclib with injection for four years no side effects really bone pain my tumour markers have gone up so had mri and ct scans which showed shadow and a 2mm growth so they are on it super quick they are tested me for a mutants gene which if I have it has a new drug not sure if it’s a tiral or not he said there are other treatments there but I’m really scared of the unknown has anyone any advice or been in the same boat only found out /yesterday got to go for the blood test Monday I was on my first line of treatment for 4 years so got a little complacent but you know cancer never lets us breath my minds working overtime lost my son four years ago to it took him so quick so suffer ptsd from that any advice or anything to settle my nerves would be so appreciated sending u all my love hope to hear from you soon 

  •  

    Hi Deedee12345,

    Thank you for contacting Macmillan Cancer Support. My name is David, one of the Cancer Information Nurse Specialist’s on the Macmillan Support Line.

    I am sorry to hear that your recent investigations and results are causing you so much concern and worry of the unknown.

    Sometimes it’s that worry or fear, of the unknown and uncertainty that can cause us the most distress.

    Sometimes its waiting for tests and sometimes its waiting for the results of those tests. But it’s recognising these feelings and emotions, then deploying your own coping strategies and taking back control.

    You might want to take a look at our Emotional Support Forum.

    It sounds like you have tolerated Palbociclib well to this point.

    Hopefully, when all the results are available from your bloods and investigations your hospital team will have a greater understanding of what is going on.

    We would strongly encourage you to ask your consultant or Clinical Nurse Specialist (CNS) questions to gain clarity of your situation and treatment plan going forward.

    We would also encourage you to have a further discussion with your GP to let them know just how much this is affecting you right now.

    We are also sorry to hear of the passing of your son and that you continue to suffer with PTSD. You might want to have a look at PTSDUK for some further information and support on that front.

    Sometimes talking to others in similar situations can help. You might want to take a look at the Breast Cancer Now website.

    If there is anything else we can help you with please feel free to get back in touch.

     

    Best wishes

    David,

    Cancer Information Nurse Specialist

     

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email.

     

    Ref/**

    DT/ FP

Help us do whatever it takes, because we’ve never been needed more.

© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007