Hi my mum is palliative for lung cancer and I am just getting passed about pillar to post when trying to get help, she was given months diagnosis in July, her pain relief has been increased regularly since September, yesterday I rang the community palliative care team as she had had 6 doses of oramorph in less than 24 hours I was told as she has anticipatory medication in place they would come out and give her an injection of morphine, I had to nip out to take my daughter to physio n they rang me and said because she can swallow they won’t give it her and to get on to The GP! The same nurse also left a full strip of Zomorph tablets on the fireplace bottom when mum has small children that visit aswell.
I feel because mums wishes are to stay at home till the end we are just being left, I ring the hospice they say I need to use community palliative care more I ring them and they send me to The GP, we have has no information or support with what to expect apart from mums Lung Cancer specialist nurse from the hospital who is an absolute angel, but because she’s been passed over to palliative care then I can’t reach out to her much really as mum is no treatment. I just want my mum to be comfortable and not suffering as she is right now, she is declining all the time she’s barely eating and drinking, sleeping more than she is awake, she’s starting to have accidents but we don’t know what should be alarming or anything
