Lymphoma

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Hello, 

I was recently diagnosed with a form of abdominal lymphoma. I have a large matted tumor in my lower left pelvis as well as enlarged lymph nodes in my abdomen, groin, armpit and neck. I have severe itching, hot flashes both during the day and nightsweats…I have had an increase in gas, almost uncontrollable, indigestion, joint pain, pelvic pain, lower back pain, severe fatigue. A new symptom is lately I’ve been feeling weird in my head, like I’m disconnected, floating, dizzy is how I can explain it. I also have a rash on my legs and chest. My questions are two… One, is it normal to easily feel my tumor some days and then other days I can’t…I’ve noticed I can feel it easily if I have a full colon and harder if it’s empty. Also, is this rash common with lymphoma? Not cutaneous lymphoma by the way. And the floating feeling in my head…is that normal? Thanks!! 

  • Hello RedLeaf,

    Thank you for getting in touch and welcome to the Online Community. My name is Donna. I’m one of the cancer information nurses on the Macmillan support line.  

    It sounds like there is a lot going on around your recent diagnosis of abdominal lymphoma. This can’t be easy and I’m glad you have reached out for advice and support.

    Here at the Macmillan Support Line, we are independent from the NHS, not part of your treatment team, therefore we have no access to your medical records to give specific advice.

    You mention a new symptom of feeling weird in the head like feeling disconnected, floating, dizzy. Also, a new rash on your legs and chest.

    Any new, changing or worsening symptoms should always be reported to your treatment team to be assessed and appropriate advice and treatment given.   

    Given your new symptoms, we would urge you to be assessed today. If you have contact details for your clinical nurse specialist or your haematologist please call them now. If you have started treatment then contact the 24hour treatment helpline immediately. If you have no details or struggling to reach anyone at the hospital, contact your GP or NHS111 or 999 if needed.

    I hope this has been helpful. Please do get back in touch once you have been assessed. We will be happy to discuss your diagnosis, help with any questions and support you as needed.

    Best wishes,

     

    Donna
    Cancer information nurse specialist

     

    Ref: DW/TT