Hello,
I was diagnosed with heart failure back in 08/2023 with a recovered EF of 50-55% as of 2024. I was also diagnosed with sebaceous carcinoma adenoma of the scalp in 12/2023 and had it removed (which was a gruesome surgery) it was a very large tumor that was kissing the skull. Had pinpoint radiation therapy everyday for 6 weeks starting in 01/2024, and then in 07/2025 was diagnosed with stage 3 endometrial cancer, and had a complete hysterectomy including, both ovaries, fallopian tubes, cervix, uterus, and had to do some burning on the colon, as it was pushing up against it. Started carbo platin, taxol and keytruda in 08/2025 for 8 hours every 21 days, my last infusion of chemo is coming up in December, but I am to continue the keytruda for another 2 and a half years every either 3 or 6 weeks. I am 36 and the surgery led me to surgical menopause also. I have lynch syndrome, muir tore with mismatch repair of H2SM and H6SM, I may be putting the letters in the wrong order. Sorry lol,
My question is about my heart. I did some research that told me my cardiologist was suppose to preform an echo complete strain on me before I started infusions, to see a baseline, However, she did not, and didn’t have one ordered until I kept complaining about symptoms I was having and a couple of trips to the ER. I at the time wasn’t aware that chemo had any effects on the heart, but I was very ill, and my pressure was all over the place. At one point they had believed I had HBP put me on meds, and then low BP and took me off the meds. My heart rate no matter is always high, and sitting in the 110’s. When preforming the echo stain, it was revealed that my GLS was at -14.86% my cardiologist said that could have always been that way, we will repeat the test every 3 months and compare. Well, I continued to have symptoms and begged to have another one after 2 more infusions. The results came back that my GLS is now -12% within a months time. My cardiologist is fine with me continuing treatment, and is unbothered by the results, but I am bothered and wanted a second opinion by someone who is in the medical field as all of my specialist belong to the same hospital and sometimes I think they’re all in cahoots with one another and I have a hard time trusting them, as I complained for months about abdominal pain and many red flag symptoms of the endometrial cancer, and was told to take stool softeners, I begged for a CT and the results from that CT said everything was completely normal. That’s a whole other story, but obviously later found out it was stage 3 and very much thriving. So my trust is broken with them, but am too involved with care at this time to try and start over anywhere new. I hope this isn’t too much, and that you could please spare some insight if any at all. All opinions are highly welcomed and appreciated!! Thank you!
