I was diagnosed last year with non muscle invasive PTA intermediate grade ( was told it was the low side ) one tumour, Also had a red patch that was benign 6 months ago.
How often does this type of cancer progress to a higher grade within cystoscopys?
Can it metastasise even tho it’s nmic ?
I’ve had 2 specks of blood, the consultant is aware and I have my next camera in 3 weeks and had a ct urogram last month with was ok but I’m very frightened
Hi lillydoor
Thanks for getting in touch with Macmillan Cancer Support, during what sounds like an understandably anxious time. I’m Linda, one of the nurses from the support line.
It’s good to read that you have your next camera (cystoscopy ) soon and that the CT-urogram result was good.
You mention that you are very frightened though, and I wonder what support you have been able to access to help with this. If they don’t know already it is good to speak with your urology team or your GP so they can support you. If needed they may be able to refer you for specialist support too.
In the meantime this guide from Patient Info about managing worry whilst waiting for tests might be helpful, as the tips can help with reducing anxiety in general.
The National Institute for Clinical Excellence (NICE) recommend that people diagnosed with intermediate non muscle invasive bladder cancer have a surveillance cystoscopy at 3, 9 and 18 months for the first year and then annually up until 5 years if they remain cancer free. This is to monitor the success of treatment and to act on any new suspicious areas in a timely manner.
For statistics regarding recurrence, progression and risk of metastases we would encourage you to speak with your urology team. As an open forum, it’s difficult to offer specific figures, especially as we don’t have any access to your clinical records or multidisciplinary team discussions. As your urologist or urology nurse specialist know your situation, they are better placed to answer this.
Statistics can vary on studies and research papers, so it is best to find out about the sources of evidence that your team use, to reduce the risk of conflicting information that can sometimes worsen anxiety.
I hope your next cystoscopy goes well, and if we can help further, please do get back in touch.
Take care
Linda, Cancer Information Nurse Specialist
You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email.
Ref: LM/SM
