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Bit concerned on my journey

Matt7831c7
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So I have just had a follow up after having a testical removed. And was shocked at what the DR mentioned. 

so it all started when I noticed my ball was bigger and hard. So I went see my GP. Who sent me for an ultrasound. Then after that I had an appointment with a urologist. Who recommended to remove my testical. With out accessing my scan results. Why happend when I went is he could not access my ultrasound results during the appointment. But after checking my testical he recommended due to my age to remove the testical. And mentioned they chances of cancer are 1% only. So in agreed. I had it removed then today saw a different urologist. And I knew something was wrong when I walked in to see him. He asked me was I aware of what’s happening and I told him the last DR had told me I may have cancer but it’s unlikely and they would remove it and test it for cancer but not to worry much. To my suprise he said I had cancer in my testical they had removed and he said he could see this on the original scan that the other one could not access. I was shocked this had happened. But it must say the new one was better. And the cancer nurse great. Now I am worried as I had cancer and it may have spread so the will send me for more tests and will see a cancer specialist in the cancer unit which as come a a bit of a shock. 
what is the likelihood of the cancer spreading? 
And how long after the CT scan will I see someone as I am now feeling anxious about I may need more treatment 

thanks 

  • Hi Matt7831c7

    Thanks for getting in touch and welcome to the Online Community. I’m Heidi one of the Cancer Information Nurses here on the Macmillan Support Line.

    I can see that you have found our New to the Community forum and Testicular cancer forum, I hope you are finding them really supportive.

    It is understandable that you were feeling shocked when you were told you have testicular cancer, when initially you were told this would be unlikely. I am glad to hear that you felt supported by the second consultant and specialist nurse during that appointment.

    After a diagnosis it is usual to have more tests and investigations. This is so your specialist team can understand as much as possible about the cancer and plan the most appropriate treatment if needed.

    It is difficult for us to know what the likelihood of the cancer spreading might be, your specialist team will have more answers for you after your CT scan. It is okay to contact your specialist nurse, or consultant’s secretary, to ask how long your follow up will be, and to chase appointments. Our information about understanding your cancer care rights may be helpful to guide you about waiting times.

    Uncertainty can be one of the hardest feelings to deal with, and having further investigations can feel stressful. There are things that might help to manage this period of time. These might include keeping as well as possible by keeping active and eating healthily. Preparing any questions you might have for you team and talking to someone about how you are feeling. Distraction at this time can help the time pass whilst you are waiting for investigations and results, do things you like to do and be kind to yourself. Relaxation techniques can help you to feel in control.

    Orchid is a UK charity dedicated to supporting men with testicular cancer and you may find their resources really supportive.

    Please do talk to your hospital team, or GP if you are feeling overwhelmed. If you feel it would help to talk things through, please don’t hesitate to contact us on 0808 808 0000. We are here every day from 8am to 8pm and would welcome your call.

    You can also check our webpage to find details of support and information organisations in your area.

    Please don’t hesitate to get in touch again if we can support you further.

    Best wishes

    Heidi

    Cancer Information Nurse Specialist 

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or email us. 

    Ref/ BL /HC 

     

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