Disclaimer

Although we take care to ensure accuracy, Macmillan Cancer Support does not accept liability for the information and materials provided or referenced in Ask an Expert or for any errors or omissions in them, or for third-party information or services such as other websites we may link to. The information and materials provided or referenced in Ask an Expert are for information purposes only and are not intended to be legal, financial or medical advice or opinions. If you need more details on your rights, please contact a financial, legal or other appropriate adviser.

We recommend that you consult your doctor if you are concerned about your health. Any You should not rely on any information and materials provided or referenced in Ask an Expert including by our Experts as they are not a replacement for advice, diagnosis or treatment from your medical team, and our Experts cannot provide a second opinion to that of your medical team.

Your question can be read by others – so please don't post your contact details or any other information that could personally identify you. Please read our Terms and Conditions and Community Guidelines for more details.

Multiple Myeloma - end of remission?

John The Coconut Dog04618b
  • 1 reply
  • 44 subscribers
  • 302 views

Good afternoon.

I was diagnosed with Multiple Myeloma in 2009, had a stem cell transplant and remission.

I then relapsed in 2022 and had a second SCT in 2024 - end of July that year. Then have been in remission again.

I had a telephone message from my cosultant on Friday last week to tell me that Paraprotein numers have increased slightly from my last blood test. I have a telephone appointment booked for 28th Oct, but am looking for some advice.

I am feeling fit and well with no symptoms.

My mental health has deteriorated though due to this and other factors in my life.

I think I need to speak to someone.

I am 67 years old Male.

  • Good morning,

    Thank you for contacting Macmillan. My name is Helen; I’m one of the Cancer Information Nurses on the Macmillan Support Line.  

    You have explained that your paraproteins have increased and I was sorry to read that this has made you worried about your myeloma again.

    It is completely normal to feel worried, despite feeling fit and well, and there is no right or wrong way to deal with your feelings, but many people say they benefit from speaking to our nurses on the support line.  

    We would be delighted to hear from you, and our contact details are below.  

    In addition, you may also find it beneficial to chat with our friends at Myeloma UK   

    In the meantime, I am popping a link here to our information on the emotional impact of cancer and the ways that Macmillan (and others) can support you.  

    Do give us a call if you feel able, and sending best wishes,   

    Helen 

    Cancer Information Nurse Specialist  

    You can speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email.  

    Ref:  HM/Lrob 

     

     

     

     

Help us do whatever it takes, because we’ve never been needed more.

© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007