Disclaimer

Although we take care to ensure accuracy, Macmillan Cancer Support does not accept liability for the information and materials provided or referenced in Ask an Expert or for any errors or omissions in them, or for third-party information or services such as other websites we may link to. The information and materials provided or referenced in Ask an Expert are for information purposes only and are not intended to be legal, financial or medical advice or opinions. If you need more details on your rights, please contact a financial, legal or other appropriate adviser.

We recommend that you consult your doctor if you are concerned about your health. Any You should not rely on any information and materials provided or referenced in Ask an Expert including by our Experts as they are not a replacement for advice, diagnosis or treatment from your medical team, and our Experts cannot provide a second opinion to that of your medical team.

Your question can be read by others – so please don't post your contact details or any other information that could personally identify you. Please read our Terms and Conditions and Community Guidelines for more details.

Digest of current NHS treatments for relapsed follicular lymphoma

Cecren
  • 1 reply
  • 42 subscribers
  • 155 views

Please can you help?  My follicular lymphoma has relapsed and may even have transformed - tests in progress.

I've been 6 years in remission and really took my eye off the ball in relation to the current treatments for follicular lymphoma.  I am a lapsed researcher, so quite happy reading research papers.  

I need to get  quick grasp of the current recommended treatments so that I be informed.  I'd like to avoid the AI garbage.

Please, could you provide me with a quick starter digest and some refernces to catch up on my understanding?

C

  • Dear Cecren

    My name is Rae and I am a Cancer Information Nurse Specialist here at Macmillan Cancer Support.

    It sounds like a challenging time for you, as you are undergoing tests for relapsed follicular lymphoma which may have transformed.

    Rather than us list all the current treatments for follicular lymphoma which has relapsed and transformed lymphoma it will probably be more prudent to wait until your tests results are back and see what treatment the haematology team offer you.  Treatment will depend on the treatment you have already had and how you responded to it, your age and general health, your test results and your preferences.

    The National Institute for Health and Care Excellence (NICE)  has information for the management of Non-Hodgkin’s lymphoma including relapsed follicular lymphoma.  If you have a transformed follicular lymphoma you may be offered chemotherapy, and if you respond well to that and are in good health they may offer you an autologous (self) stem cell transplant.  You may also be offered CAR-T cell therapy, a bi-specific antibody, or an allogenic (donor) stem cell transplant.

    Waiting for test results can cause many emotions, our nurses on the support line are very happy to talk to you about how you are feeling during this time.  There is also the Cancer Care Map where you can find the local and national support available at this time.

    Best wishes,


    Rae
    Macmillan Cancer Information Nurse Specialist

    Our Reference: RH/KE

Help us do whatever it takes, because we’ve never been needed more.

© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007