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Chemotherapy treatment based on oncotype score

Silvabell
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Hi,

I have been awaiting histology results post lumpectomy (second operation) and the breast care nurse rang today to say I will need chemotherapy, due to oncotype score of 35. This would be in addition to the radiotherapy and endocrine therapy that I was expecting. I'm completely shocked and terrified. 

Do they always do this oncotype test? It was never discussed at appointments. Also if my lymph nodes are clear ( therefore the cancer hasn't spread?)..why would I need Chemotherapy? 

I'm hoping that you can provide some information  and support. I've just got through two operations in a month and don't know if I have the strength to take all of this on. I feel overwhelmed.

Many thanks

  • Dear Silvabell

    Thank you for getting in touch with us at Macmillan Cancer Support. My name is Debra and I’m one of the Cancer Information Nurse Specialists on the Macmillan Support Line.

    I’m sorry to hear that you’ve had to undergo 2 recent operations for your breast cancer and now you’ve been told that you need chemotherapy, which has obviously come as a shock.

    The Oncotype test has been used widely in the UK for some time now, its main purpose is to assess your risk of breast cancer recurrence and help your medical team determine whether chemotherapy would be of benefit. I’m surprised that they haven’t previously discussed this with you and explained what the outcome of the test would mean for you. I’m attaching a link here to the Breast Cancer Now website that has a really good, detailed explanation that I hope you will find useful.

    Basically, a score of over 15 (if you’re under 50 years old), or over 25 (if you’re over 50 years old), indicates that you would benefit from having chemotherapy in addition to any hormone or radiotherapy treatments, by reducing the risk of a recurrence. Making treatment decisions can often be difficult, so I recommend that you speak to your medical team about this.

    Most people facing a cancer diagnosis and subsequent treatment can feel overwhelmed at times so I’m glad to see that you’ve joined our Breast Cancer forum. It might also help to look at the Natia Cares App or maybe you would prefer to speak to your GP about how you’re feeling. Some people also find it helpful to call our support line and speak to one of the nurses about how you’re feeling.

    I hope this information helps. Please feel free to get back in touch if you want further information or support.

    Best wishes

    Debra

    Cancer Information Nurse Specialist

    You can also speak with the Macmillan Support Line team of experts by phoning 0808 808 0000, calls are free, and lines are open 8am-8pm, 7 days a week, or you can send us an email or use webchat.

  • in reply to Debra - Macmillan

    Thank you Debra for being there. This is helpful information and I appreciate your support.

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