Aggressive prostate cancer

  • 1 reply
  • 44 subscribers
  • 204 views

Hi there, my father (64) was diagnosed back in March with bladder cancer and aggressive prostate cancer. He has had a large tumour removed from his bladder and then completed 6 weeks of mitomycin chemotherapy. He had a PET scan 4 months ago which showed the prostate cancer hadn’t spread. He has a Gleason score of 9 and the tumour is on both sides of his prostate. He was going to have radiotherapy and hormone therapy but they changed their minds saying that due to his bladder cancer, he would need a radical prostatectomy. We met with the surgeon and he was so rude, belittling and awful to my dad. My dad also has Fibromyalgia and suffers badly with mind fog and forgetfulness. The surgeon ranted at my dad and even ‘shushed’ me! This has worried my dad and now is even more frightened. He’s just had his operation for the removal of his prostate cancelled for the 3rd time. I don’t know if I did the right thing or not, but I put my dad’s results into chat gpt to try gauge any info to help and now I’m even more stressed. I haven’t told my dad this as I don’t want to worry him further. We’re 5 months on from dad’s diagnosis and surely it should have been weeks for treatment and not months? Will all this delay now mean that the aggressive cancer will spread? I am feeling a little helpless and don’t know what to do.

  • Hello Hunyjh8eb417 

    Thank you for contacting Macmillan. My name is Helen, I’m one of the Cancer Information Nurses on the Macmillan Support Line. 

    Welcome to the online community.  

    I was very sorry to read that your father has a diagnosis of both a bladder and a prostate cancer. What a worrying time this has been for you both.  

    We don’t have access to your father’s NHS notes to be able to understand the background behind the decisions made, but the decision to treat his bladder cancer first, and his prostate cancer afterwards, will have been made by his multidisciplinary team (MDT).  

    This is a team made up of many cancer professionals, who would have discussed at length your father’s situation. They would have had to weigh up the clinical risks and benefits of treating one cancer before the other and decide as a team the best way of treating them both.  

    If treating his bladder cancer was the first priority it has meant his prostate cancer has had to wait to be treated. Naturally you are very worried about the delay.  

    In addition, you both had a very upsetting consultation with your father’s surgeon, which was saddening to read. This has left your father, who has issues remembering or recalling information, in a frightened state and with both of you having questions left unanswered.  

    I would like to suggest two things that I hope will help. Your father should have a urology cancer nurse specialist (CNS). This professional is a member of the MDT, and their specialist role is to support patients, and their families, through the process of diagnosis and treatment.  

    Your father’s CNS will be able to help you both understand why the treatment plan for his prostate has changed. In addition, they can explain whether recent scans and blood tests show any changes to the prostate cancer status from the results 4 months ago. This seems so important to understand so that you can feel less worried.  

    You, or your dad, can have a look through his hospital's paperwork for a number (often on a green Macmillan card) for the CNS. If you can’t find their name and number, you can contact them by calling his treatment hospital and asking to be put through to the urology nurse specialist team.  

    You explained you are feeling helpless and don’t know what to do, and a search using ChatGPT has made you feel worse. May I gently encourage you to phone either Macmillan’s or Prostate Cancer UK’s support line instead? We are both excellent resources of trusted information and, most importantly, of emotional support. Do consider ringing as I believe it will help.  

    With our very best wishes,  

    Helen 

    Cancer Information Nurse Specialist  

    You can speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email.  

    Ref:  HM/SH