Breast primary with liver, bone and lymph mets. A question about end of life.

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I know this is difficult to answer but any help would be appreciated. 

Background - My mum was diagnosed with primary breast cancer with liver, bone and lymph mets 4 years ago. She was given less than six months to live. A year ago she had a massive stroke and lost mobility down one side and her speech. So she has gone x8 her original prognosis. She is a super strong lady!

one month ago - awake most of the day and some of the eve. she was managing a big bowl of fruit, a cookie and a small dinner. (Oh and a supplement drink), per day. A cup of tea, some squash and a latte also. She was also using her standing transfer every day. 

3 weeks ago, she was managing a big bowl of fruit, a cookie and a couple of small rolls for dinner. (Oh and a supplement drink), per day. A cup of tea, some squash and a latte also. She was also using her standing transfer. Starting to sleep more. 

2 weeks ago - she has constipation. Goes into hospital and comes out feeling less constipated. Is only managing small bowls of fruit and a supplement drink. Not as much fluid intake. Is discharged from hospital with a hoist just in case. Oh her oedema is getting more noticeable. I have to buy her bigger clothes, even though she is barely eating. Legs looks swollen.  

1 week ago - Is using both the hoist and the standing transfer depending on how she feels that day. 

Current - has not used the standing transfer for a few days now.  She can no longer eat solid food. She is only managing to drink a small smoothie and about half a supplement drink. She can still swallow her tablets and fluids. She is drinking most of a cup of tea, and some squash per day. 

Any idea how long? Is this days? Weeks? The reason I need to know is because I am fortunately able to take about 5 weeks off work, BUT, I have to time it right. I can't do it twice. I would love to take the last couple of weeks to be with her and then a week or so after, to not have to rush back and be super busy. It's important to us both that I time this right.  

I should add, she is under hospice care, but they don't really answer my questions directly. I know no one knows, but some help with what to expect would be appreciated. 

Thank you. 

  • Dear 6cats

    My name is Alison and I am one of the Cancer Information Nurses with Macmillan Cancer support. Thank you for getting in touch with us and I hope you find the online community a helpful and supportive environment.

    I'm really sorry to hear about your mum's condition. It sounds like she has shown incredible strength throughout her journey. While it's difficult to predict exactly how long someone has, there are some common signs that can indicate the end of life is near.

    Based on the information you provided, here are some signs that might suggest she is in the final stages:

    Decreased Appetite and Fluid Intake: As you mentioned, she is no longer able to eat solid food and is only managing small amounts of liquids.

    Increased Weakness and Fatigue: She has stopped using the standing transfer and is relying more on the hoist.

    Swelling (Oedema): The noticeable swelling in her legs is a sign that her body is retaining fluid.

    Changes in Consciousness: Increased sleep and less interaction with her surroundings can indicate that the body is starting to shut down.

    These signs suggest that she may be in the final weeks or even days of her life. However, it's important to remember that every individual is different, and these timelines can vary.

    Given your situation, it might be best to start your leave sooner rather than later to ensure you can spend meaningful time with her. Hospice care providers can offer more personalized guidance based on their observations.

    Hospice UK offers information and support they are the national charity working for those experiencing dying, death and bereavement.  They work for the benefit of people affected by death and dying, collaborating with hospice members and other partners who work in end-of-life care.

    Marie Curie have excellent information regarding when someone close to you is dying away from home.  Marie curie has an information and support line.  You can contact the helpline on 0800 090 2309.

    Macmillan has information and support if you are being cared for at home, which you may find useful to read over.

    NHS Hospice Care gives information about end of life care, planning and the wellbeing of the patient.

    You sound totally heart broken and may benefit from calling us at Macmillan for some emotional support on 0808 808 0000 option 1. You may also find beneficial getting help with your emotions which discusses who can you.

     

    Kind Regards

    Alison, Cancer Information Nurse Specialist 

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email

    Ref/KE 

  • Thank you so much for your helpful reply. I will have a look at the resources mentioned. Thanks again.