High Grade Ovarian Cancer

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I have just updated my profile , and apologise that it is fairly lengthy so will try and keep this short.  My question is what treatment would be available to someone like me who has had a full hysterectomy for womb cancer early stages but complicated op as had several previous ops that lead to lots adhesions. The hysterectomy in 2020 also made removal of  a small section of bowel necessary.  I already had an ileostomy. I never recovered fully and fistula’s were suspected,  lots of pain has followed, and a mass in my tummy was revealed and measured several times.  Nephrostomies were fitted to both kidneys last year because ureters were being squashed.  After lots of delays a biopsy was taken in April 2025 and Ovarian cancer diagnosed.  I’m being referred back to my original surgeon who carried out my hysterectomy.  Only through a short telephone conversation with clinical nurse did I learn that I have what she described as a high grade cancer.  I rang to ask if staging and grade were known.  My pain has increased a lot since the biopsy and I find it difficult to get sustainable relief.  I seem to be in limbo again at the moment but would like to my options if any.  Thank you

  • Hi Mcleod,

    Thanks for getting in touch and welcome back I see that you are on other groups. I hope you are finding these helpful.  I’m Kate one of the Cancer Information Nurse Specialists here on the Macmillan Support Line.

    I have just read your profile and the information you have provided here. I am sorry to hear that you were diagnosed previously with endometrial cancer, and you have had multiple surgeries and complications over the last few years. It is understandable for you to feel in limbo after your biopsy and a diagnosis of ovarian high-grade cancer without a plan in place.

    Here at Macmillan, we are independent of the NHS and do not have access to medical records or information. We are therefore unable to give personalised advice, however we can give general information and support.

    Your hospital team will discuss your biopsy results in a Multidisciplinary team (MDT) meeting. They will discuss what the best treatment plan would be for you going forward and discuss this with you in your next appointment.

    There are different treatment options available, but these depend on your situation. This will be based on your stage and grade of ovarian cancer, any previous treatment you have had, if you are fit and well enough, also based on your own wishes.

    You mentioned your pain has increased since your biopsy. Please speak to your GP about a pain review. There are different types of pain that you can experience and pain relief that can be effective for this.

    It can be a very emotional time when you are diagnosed with cancer, and we can see this has been ongoing over the last few years. Please be kind to yourself and seek help if you feel you need emotional support.

    It may also be helpful to chat in more detail with one of our nurses, by giving our support linea call. We often find we can explain our answers in a bit more detail over the phone, giving you the opportunity to ask more questions if needed.

    I hope this information is useful. Please don’t hesitate to get back in contact by email, webchat or phone, if you need further information or support.

    The Macmillan Support Line offers practical, clinical, financial and emotional support. You can call us free from landlines and from most mobile phone networks* on 0808 808 00 00, 7 days a week, 8am – 8pm.

     

    Take care, 

    Kate,

    Cancer Information Nurse Specialist 

    Ref KE/LzM