Confliction for treatment plan

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I was going through the NHS after being diagnosed with breast cancer my histology reports after removal of 1.8cm tumour showed 0.5 clear margin but they wanted 1mm so had 2 further ops and still no clear margins. It is store positive but HER negative… I eventually had a reduction and we got clear margins there was 3mm of DCIS left and the rest of the tissue was clear.  MDT at the NHS recommend radiotherapy and tamoxifen and stayed grade 2 but progressive.  I then went private for my radiotherapy and the consultant thought my histology results should have been chemo and radio to reduce the risk of reoccurrence. She requested an oncotype test and it came back of a score of 17, she is still recommending chemo but I feel the side effects outweigh the benefits as I am 46 and perimenopausal she gels this is the best option and states others at their MDT meeting agreed but it was a long discussion which to me seems like not everyone agreed… I’m unsure of what questions to ask so that I can make the right decision. 

  • Hi, Amanda 79

    Thanks for getting in touch and welcome to the Online Community. I’m Kate one of the Cancer Information Nurses Specialists here on the Macmillan Support Line.

    I am sorry to hear you have had some conflicting advice regarding your ongoing treatment. I hope you are recovering well after your surgeries. The Oncotype DX can help your team decide if you would benefit from chemotherapy.

    For some people the benefit of chemotherapy is clear, but for others it’s less clear.

    A score of 17 is a lower score but because you are under 50 this maybe why she is recommending chemotherapy.

    Asking questions about your treatment can make it easier to make decisions.

    You may want to ask the type of chemotherapy you will have and what side effects you may experience. This may help in your decision with the chemotherapy treatment.

    It is difficult to make decisions not knowing what will happen in the future, but it is important to make the right decision for you now with the information you have been given.

    You could speak to your NHS breast care nurse and discuss this with them as they will have access to  your records.

    It may also be helpful to chat in more detail with one of our nurses, by giving our support line a call. We often find we can explain our answers in a bit more detail over the phone, giving you the opportunity to ask more questions if needed.

    I hope this information is useful. Please don’t hesitate to get back in contact by email, webchat or phone, if you need further information or support.

    The Macmillan Support Line offers practical, clinical, financial and emotional support. You can call us free from landlines and from most mobile phone networks* on 0808 808 00 00, 7 days a week, 8am – 8pm.

     

    Best wishes,

    Kate,

    Cancer Information Nurse Specialist 

    Ref KE/SH