I started my prostate cancer journey with a diagnosis is April 2016 followed by pelvic radiotherapy and triptolerin hormone treatment which reduced my PSA to negligible levels.
All was well until spring 2024 when my PSA rose above 2 and I was sent for scans. which revealed at metastasis on C7. High intensity radiotherapy was considered but ruled out as too dangerous.
I was given one dose of Diagerlix prior to Relugolix becoming available in November 2024. I have been on relugolix ever since.
In October I was started on alendronic acid and the enzalutamide on 17th November On the 18th Nov I was taken to A&E by ambulance suffering severe nausea and diarrhoea. The cause is uncertain but the alendroic acid was the key suspect and immediately stopped.
Enzalutamide was stopped in early Feb 25 due to brain fog and balance issues.
On 6th March I started on apalutamide but this was stopped on 12th March following further balance issues. On 24th March I suffered a seizure and was taken to A&E. The discharge papers cited apalutamide as the probable cause.
I have an appointment with my Oncologist next week but I am very much wondering what my options might be.
