HCC

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Hi all, hope everyone is feeling okay and holding on. My mother ,71 years, has been recently diagnosed to have HCC liver cancer, with one met in vertebra. It's non resectable, she also has many co morbidities, diabetes, obesity. I stay and work in UK, She is in India, my brother is looking after her. She had symptoms of nausea and lack of appetite for 3 weeks that's all, picked up on ultrasound then HRCT, biopsy. It's been so difficult to process this. I have been reading a lot it seems so scary. They have advised to start Lenvatinib which has started to show the side effects like high BP, sore mouth, diarrhoea. Awaiting to have final biopsy result as there was dilemma between HCC or cholangiocarcinoma and neither seems to be better though...We are awaiting to start immunotherapy called durvalimumab. Has anyone taken/ this. Does It have any better effect on symptoms, less side effects, better quality of life? Better survival ? This is so overwhelming. I can't concentrate on work, children, or anything. Every morning It feels if this was a bad dream and hope not true but it is. It feels the time is clicking...how to cope with this? I'm really struggling and feels helpless. Just wanted to share. 

  • Hello Prayers,

    Thanks for getting in touch. My name is Megan, I’m one of the Cancer Information Nurses on the Macmillan Support Line.

    Your message was transferred over to the Ask A Nurse service as it was felt that we would be better placed to respond to your query.

    I am sorry to hear about your mum’s cancer diagnosis and about the ongoing worry and distress this is causing you. It must be difficult being so far away, but I am glad to hear she is being looked after by your brother.

    As a UK charity, it is difficult for us to reply in detail to questions about people with cancer who live outside the United Kingdom. This is because there are differences in health services and care in other countries.

    I hope this general information on Durvalumab (Imfinzi) will prove useful as it includes advice on the common, occasional and rare side effects that people experience. But please be mindful that the information has been taken from UK population and therefore may differ from the population in India.

    I encourage you to speak with your mum’s cancer team to further understand the intention of the treatment and what she might expect. Perhaps your brother could help facilitate this by getting a contact number or email address for you.

    It is understandable that you have lots of feelings currently but I was concerned to hear that you are really struggling and feel helpless. It is important that you to are receiving support during this time. I strongly encourage you to speak with your own GP about how this is affecting you.

    You and your family may also find support through overseas cancer organisations that I will link here.

    I hope this information is useful. Please don’t hesitate to get back in contact by email, webchat or phone, if you need further information or support.

    The Macmillan Support Line offers practical, clinical, financial and emotional support. You can call us free from landlines and from most mobile phone networks on 0808 808 00 00, 7 days a week, 8am – 8pm.

     

    Best wishes, Megan

    Cancer Information Nurse Specialist 

     

    Ref MD/LJ