Esophogeal cancer / stomach cancer

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I am sorry if this is long winded. But I'm going out of my mind. I have had acid reflux for over 10 years im 38 now. I have taken lanzoprazole for 10 years but in Oct last year I noticed rice and burgers sticking in my chest , felt like it doesn't really go down.

I told my gp who referred me on the 2 week referal urgent cancer, since she said that I felt like I couldn't swallow anything, like I've forgot how to do it naturally , but I have to chew my food a 1000 times and I'm still scarde to swallow. When I do I feel like it sits in the bottom of my throat for ages, if I push like force a burp it comes back up. I am convinced I have cancer . I'm so scarde it's not getting treated because everyone thinks it's just anxiety.

So in the 2 weeks I went for a transnasal endscopy , I was so anxious it only got to my throat and I started freaking out .The endscopy had to be abandoned and an urgent ct was ordered.

A week later I went for my ct and my anxious mind took over I refused the contrast. So I had a regular ct from throat to pelvic. The radiographer explained without the contrast it would be sub optimal and smaller things could be missed. I feel like such a failure not being able to mamge the procedures I need.

My ct results came back clear so the 2 week cancer team discharged me from them, my gp says I don't have cancer but my swallowing seems so bad and I can't help thinking the ct missed something . Also I spoke to a lady my age with esopgeal cancer has a feeding tube because she can't eat anymore, she was diognosed with endscopy but her ct was clear.

This makes me terrified and I really don't know what to do xxxx

  • Dear Benson86,

    Thank you for getting in touch and welcome to the Online Community. I’m Kerry one of the Cancer Information Nurses here on the Macmillan Support Line.

    I am sorry to hear of the difficulties you are experiencing with swallowing (Dysphagia).

    Understandably this has caused upset and fear for you especially when you know someone who has experienced similar symptoms.

    Everybody is different in what they experience however we would always recommend any new, changing, or worsening symptoms to be assessed further.

    It is great to hear your scan results came back clear.

    Swallowing difficulties can happen for numerous reasons including acid reflux.

    If you are still having concerns with swallowing difficulties, you need to reach out to your GP or 111 for further assessment.

    You may want to discuss if the tests could be repeated with them prescribing medication to relax you during these procedures so that contrast can be injected or the scope inserted easier without too much distress for you.

    You could ask your GP to refer you to a speech and language therapist or a dietitian for advice about your swallowing and diet.

    These specialists may be able to offer swallowing therapy or aids to help if necessary. You can read more about all of this here.

    It can be overwhelming and cause anxiety when experiencing symptoms with unknown causes. It is important to look after yourself during this time and reach out for support when you need it.

    It may be helpful to let your GP know how this is impacting you. You can find information on coping with anxiety and worry here.

    I hope this information is helpful. If you have any further questions, please get in touch again. You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email or contact us through Webchat

    Best wishes

    Kerry

    Cancer Information Nurse Specialist

    Ref KHa/LJ