NET tumour with liver mets

Hi Polly200

Welcome to the online community. I’m Sarah one of the nurses on the Macmillan support line.

I am sorry to hear that your dad has been diagnosed with a NET tumour in his small bowel with liver mets. It is understandable to feel uncertain and depressed with a new diagnosis. As his daughter I cannot imagine how this makes you feel and can understand that you are also struggling. I hope the links and information here will help you both.

A cancer diagnosis can cause different emotions. There is no wrong or right way to feel. Early on in a diagnosis there are usually many unanswered questions which can cause any worries to circle.

Thinking through the questions to ask your dad’s professor, can give you some focus. I am sure you both will have many questions so try to think through the most important for your dad.

Your dad’s cancer team will have all of your dad’s results about his cancer and what treatment is best. You can ask for a second opinion from another consultant or hospital trust who may have more experience with rare cancers such as a NET tumour.

Lanreotide is a man-made version of a hormone called somatostatin. This drug is used to slow the growth of NET tumours. It can be helpful to focus on health before starting treatment, something known as prehabilitation.

There can be a lot to think about when you are supporting someone with cancer. You may find it helpful to join our friends and family forum in our online community, to share your feelings and get support. You may also want to look at programmes such as our HOPE programme which is designed to support those living with cancer.

You may find it better to call us to talk things through. Sometimes it’s better to talk to one of our nurses so we can gain a better understanding of the current situation and give you the best guidance.

I hope this information helps. Please feel free to get back in touch if you want more information or support.

Best wishes,

Sarah B

Cancer Information Nurse Specialist 

You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email. 

Ref SS/PW