Bladder Cancer follow up BCG treatment

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Looking for some advice and guidance from anyone that has been through non-muscular invasive Bladder Cancer (stage 1).  Long story short, my Dad was diagnosed with this a couple of months ago and had successful surgery to remove the cancer cells.  It was confirmed as stage 1 inc-itu and so thankfully the only follow-up treatment he needs is a 6 week course of the BCG Chemo injections.

The issue we have is that he is unable to hold the BCG for even a moment after it is inserted.  The first time they physician tried the standard procedure through a catheter, however, it just leaked straight out.  The second time, the physician tried a small catheter and planned to close the end so that it couldn't leak out but his bladder went into instant spasm and threw out the BCG before he even managed to close it of.

We are now waiting to go back to see what other options there are so that he can have the follow up preventative treatment.

Surely he cant be the only person that has faced this so as just wondering if there is anyone who has had any experience or knowledge of this and any suggestions so as to move forward?

Thanks so much!

  • Dear AngelGirl,

    Thank you for getting in touch with us and welcome to our Online Community. I’m Alison, one of the Cancer Information Nurse Specialists who work on the support line here at Macmillan.

    It’s good to hear your dad’s surgery was successful and his cancer is in its early stages, although it must be frustrating that the preventative BCG treatment hasn’t been successful.

    It’s not unusual for patients to have difficulties in retaining the BCG treatment. Further discussion with his team may help identify other treatment options or the possibility of a dose reduction. If there are no alternatives or he continues to not tolerate the BCG, the team may decide to stop this preventative treatment. This wouldn’t impact his follow-up and would continue to have regular cystoscopies to monitor any recurrence in the bladder.

    It can be helpful to talk with others who have had this treatment or any alternatives to find out more about what happens next and potential options your dad may have. Our Bladder Cancer group on our online community can be an invaluable source of information and support.

    I hope this is helpful and if you need to ask further questions please don’t hesitate to get back in touch.

    Take care,

     

    Alison,

    Cancer Information Nurse Specialist 

     

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email. 

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