terminal lung cancer

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Hello, I’m Jane, Happy New Year to you. 

In March 2024 I was diagnosed with terminal lung cancer. I wasn’t given a time scale and, to be honest, I’d rather not know so I’ve not asked. I do know that I’ve got less than 5 years but I might have just a few months, weeks or days. I’ve got no idea.

Anyway, some background - the last time I saw the consultant oncologist was 25 September and I had a follow up telephone appointment with his useless assistant on 20 November. On both occasions they said they would arrange palliative care to get in touch with me but no one has contacted me yet! On 10 December I had a CT Scan with contrast. Nobody has contacted me about that either. My feeling is that I have just been cast adrift by the NHS to die alone. I live alone although my brother, who lives 17 miles away, has been taking me to appointments and has been as helpful as it’s possible to be for someone in his mid 70s with a family of his own to take care of. To be honest I don’t know what I would have done without him. 

For a number of months I have been suffering from constant, i.e. 24 hours a day, nausea. It has been getting worse and at the moment its so bad I haven’t eaten anything for four days. I forgot to mention that as well as the tumour in my lung I have a cancerous lymph node in my neck which makes me cough. Just lately the cough has been so bad it’s been making me vomit but because I have eaten nothing all I have brought up is water which is all that I drink at the moment along with the very occasional glass of lucozade and cup of camomile tea. 

Is there any advice you can give me to help with the nausea and the cough. I’ve had oramorph prescribed for the cough but it has had no affect. 

At the moment I just want to die quickly. 

Kind regards

Jane x

  • Hi  

    Thanks for getting in touch with our online community. My name’s Louise and I’m one of the Cancer Information Nurse Specialists here. Welcome to the online community.

    I’m sorry to hear you are struggling with your symptoms and feeling like you have been cast adrift by your healthcare team. It sounds like you are having a difficult time.

    It’s important to be comfortable. With the right medications to manage the nausea and cough, and the right support things can be so much easier.

    Because you have mentioned that you have been vomiting and haven’t eaten anything for four days, there is a risk of dehydration and malnutrition, which can cause complications and serious illness. We would encourage you to phone 111 straight away for assessment.

    Going forwards, the palliative care team are there to help get the right medications to manage symptoms like nausea and a cough and provide ongoing support.

    It can be frustrating when you don’t hear anything from your healthcare team. You can contact your GP to ask if they have the scan results and refer you to the palliative care team. The GP can also get the district nurses involved for support.

    It sounds like you have good support from your brother. It can be difficult when people have their own family and they are busy, and this is why there is so much support out there for people with cancer. I’m pleased you have found us on here. It can really help to share experiences with others in a similar situation.

    It might help to call us. One of our nurses would be happy to talk things through.

    The Samaritans is also there for anyone who's struggling to cope, who needs someone to listen. They can be contacted 24-hours a day on 116 123

    Kind regards  

    Louise, Cancer Information Nurse Specialist  

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email.  

    Our Ref:  LR/Khe/JL