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Decapatyl 22.5mg hormone injection

simon IVA
  • 2 replies
  • 37 subscribers
  • 156 views

hi I'm Simon , have stage 4a Prostate cancer .

my question is; why can't the hospital give me this injection?? I do not have any sort of relationship with my GP, I cant move to another GP as i'm not in any catchment  , the only way is to move myself. my second 6 month one is due at the end of February. I have asked and asked if they can help me sort it out but my oncologist team don't want to know, I have so many mental health and physical problems which cause me problem with people that dismiss me and don't listen to the words that come out of my mouth. Iv'e asked to be moved to Palliative care ready to stop treatment if they won't help. and Bang!! that was done instantly, so i'm hoping the referral to a different hospital will be as quick.can you help or is that it?

kind regards

Simon

  • Hi Simon

    Welcome to the online community. I hope you’re finding it helpful to share your experience with us.

    I’m sorry to hear that you are undergoing treatment for prostate cancer and that you are not feeling heard by your treatment team. It is usual for the Triptorelin (Decapeptyl®) injection to be given by the GP or practice nurse. If you feel that this is not the most appropriate place for you to receive your treatment then you may want to read the NHS Choice Framework, section 10 talks about making reasonable adjustments and this may be relevant in your situation.

    I know that you feel you don’t have a relationship with your GP currently, but I would advise that you make an appointment with them to discuss your concerns about not being heard by your oncology team and see how they can support you going forward. You can also ask them about a referral to a second hospital if you wish to pursue this further..

    Your GP will also be responsible for your ongoing care and will coordinate who is involved as your needs change over time. Therefore, it is important that you have a conversation with them to discuss your current needs and to begin to build that relationship.

    I am glad to hear that you have had a referral to palliative care as they are able to support you whilst you are on treatment or if you make a decision to stop this. If you have symptoms related to your cancer, they can assess and manage these appropriately, they can also offer emotional support.

    On this platform it can be difficult to have a two-way conversation and to fully understand what you are going through.

    If you’d like further explanation or have any other questions, please feel free to recontact us. Or if you it may help to discuss things with someone outside the loop please feel free to give us a call or contact us via our web chat platform.

    I hope this information has been useful, please contact us whenever we can help. 

    Take care.  

     

    Kathryn

     

    Cancer Information Nurse Specialist  

     

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email. Ref: KR/Lrob

  • in reply to Kathryn- Macmillan

    hi Kathryn,

    thank you very much for answering my message. you're the only one that has actually given me some information . I will look in to article 10, going back to the GP is definitely not on the table , I only use them for prescriptions, this is why I asked for Palliative care might have someone to talk to not just be an appointment number,.  thank you again ,

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