SCC pT3 on chin area removed

  • 3 replies
  • 37 subscribers
  • 166 views

I discovered a pimple on my chin which in 4 short weeks had grown rapidly, was excised and diagnosed as SCC pT3. The  tumour was removed with clear margins but only just in some areas. Histology said SCC, moderately differentiated, invading deep skeletal muscle, widespread perineural invasion with some lympovascular invasion. It had a margin in one area of < 0.1mm due to separate focus of tumour embolus with a vessel. 
It was referred to a MDT who recommended 2nd op with wider excision which has since been done and it was felt clear margins achieved after that. after that the MDT recommendation is just to do regular skin checks. 
I asked if they would check if it has spread (untrasound/ CT scan/MRI but they said NICE guidelines do not necessitate it and they do not recommend radiotherapy. 

im so concerned about the perineural invasion and don’t understand the line about the rumour embololus. 
I also don’t understand why it grew so aggressively and so quickly. I’m not a sunbather although am a fair skinned 57 year old.x 
I am looking for some reassurance that the invasions they mentioned don’t require further investigation? 

when I go for my follow up checks the consultant only checks the area around my original SCC as he says this is where it is most likely to reappear. I am concerned that I should have full body scan/ mapping to ensure there are no other areas of concern now but this doesn’t seem to be offered. Is this something I should be asking for? 

  •  Hello Solver, 

    Thanks for getting in touch with us during what sounds like a stressful time for you. I’m Linda, one of the nurses from our support line. I hope that you are finding the skin cancer forum helpful.

    It’s understandable that you have concerns about your follow up. Normally follow up would be based on the risk of the recurrence of the SCC. Higher risk people are normally seen regularly for 1-2 years by a specialist or their team. Having regular follow up will enable the specialists to promptly act on any changes that may occur.

    The National follow up guidelines for squamous cell carcinoma show the follow up recommended based on the risk category. They do not recommend having scans as part of it.

    Adjuvant radiotherapy (radiotherapy after surgery) is only recommended if the tumour cannot be re-excised.

    I would encourage you to discuss the recommendations for your risk category with your specialist. You may also wish to raise your concerns about not having scans.

    I hope this helps.

     

    Take care and best wishes,

    Linda J.  (Cancer Information Nurse Specialist)

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email or use webchat.

    Ref: LJ/AMc

     

  • thank you for responding. Yes I am classified as high risk as the SCC was so aggressive so am seen every 4 months by my consultant privately. (I had the excision done privately due to the wait times on the NHS and my concern by how rapidly it was growing). 

    but in the follow up appointments he only focuses on the area around where I had the initial excision as he feels that is the area it is most likely to reoccur. 

    I had thought that at some point they would do a full body check  to ensure there is nothing else of concern… does this not happen? It seems standard in the USA post SCC? 

  • Dear Solver,

    My name is Luzia and I am one of the Cancer Information Nurse Specialists on the Macmillan Support Line. Thank you for your follow up question about the follow up procedures for SCC.

    Each country has their own standards of treatment and follow up. British Association of Dermatologists confirms the British guidelines also.

    This sounds like a difficult time for you. Please call one of our nurses directly if you want to talk over your situation. We may then be able to give you further information.

    Take care,

    Luzia

    Cancer Information Nurse Specialist

    Ref: LzM/SMc

    Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email. If you think it may be useful to chat things over in real time, we have our webchat service available 7 days a week 8am-8pm.