This May I recognized a lump under my left arm. It seemed like a swollen lymph node, and shortly after a rash appeared in my left axilla. Some time after, the lymph node disappeared, but in the following months it reappeared occasionally.
I went to the doctor, but she made an ultrasound and told me the lymph node looked normal.
In the end of September I recognized a change of skin on my left breast. There were ridges going from the nipple to the outer area of the breast, it looked a bit like cellulite. Also, my left breast has grown in size and looks a bit like it is "hanging" more than the other one. I have visited some doctors, and they all told me that the ultrasounds looked fine and that asymmetry was "natural". But in my case, my breasts have always had quite the same size and the asymmetry was a new thing, which is why I was still worried.
I got an MRI done and the radiologist told me all was normal, the MRI showed an enhancement in the left breast but it was considered BIRADS 2.
I was sent to PET CT as well, which showed only slightly darkened areas above the breast and under the collarbone, and dark areas in the cervical region, but nothing in the breast itself.
Now, two days ago, the lymph nodes under my left arm became swollen again. I can feel one with my hand and another one that is so big I can even see it in the mirror. I wend to a gynecologist today, he made an ultrasound and told me that one lymph node was around 2 cm, but of "normal architecture". The ultrasound did not show changes in the skin and the gynaecoligist said all is fine.
Still, I am very worried. On the internet everyone says to see an IBC specialist, but that seems not to exist in Germany. I do not know where to turn to.
Is there any specialist on IBC in Europe? And in UK? Where can I go?
