My mum has recently been diagnosed with lung cancer. We are still awaiting a date for PET scan, which is agonising in itself.
She was lacking energy and appetite and therefore prescribed 2mg dexameathosone. A week later, she is finding her sleep is being affected, and she is considering stopping the steroid. I'm worried this might set her back again. She does not want to rely on sleeping pills.
Thanks
Hi Roseeee,
Thank you for getting in touch with us and welcome to our online community. My name is Kelly and I’m one of the Cancer Information Nurses here at the Macmillan Cancer Support helpline.
There’s always a lot of uncertainty knowing what to expect after a diagnosis of cancer. Especially while waiting for further tests and trying to manage any symptoms.
It’s good to hear that the dexamethasone is working well at boosting your mum’s appetite and energy levels. However, we’re aware at the same time it can also cause wakefulness.
It may be helpful for your mum to speak to her GP, consultant or named lung cancer nurse specialist (if she has been given details of one at the hospital). They will be able to give further reassurance and support with the timing of the PET scan and the sleep problems she is experiencing.
It’s important for them to know if your mum is thinking about stopping the steroids so they can consider if there is anything else they can do to help.
For example, they could check if it is possible to reduce the dexamethasone dose slightly or ensure it is not prescribed to be taken at night time where the effects may be strongest in the initial period after taking it.
Sometimes exploring different ways of improving appetite and sleep problems without medicines can be considered too.
Our building up diet information gives hints and tips to boost appetite. This includes ways to add more energy and protein into smaller portions of food eaten. Sometimes dietary supplement drinks can be prescribed to help add essential fats, minerals and vitamins which can also help with energy levels.
Your mums’ doctors could also refer her to a dietician who could provide a tailored dietary plan for her.
Sleep problems can be cause by medicines but also worry and anxiety. Sleeping tablets may be suitable for a short period of time but not suitable for everyone.
Many people consider behavioural therapy techniques ranging from mindfulness and relaxation to counselling support. Local cancer support centres may offer this type of support and well worth exploring to find out. They often provide support to families and it’s important to look after yourself at this time too.
I can see that you have already joined the lung cancer forum on our online community.
We also have a family and friends forum which is a place for you to share your feelings and get support.
I hope this has been helpful, but please don’t hesitate to get back in touch if needed for further information and support.
Best wishes and take care,
Kelly (Cancer Information Nurse Specialists)
You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email.
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