I’m wondering if anyone knows of a specialist role dedicated to cancer patient advocacy, someone who can provide comprehensive, personalised support throughout the treatment journey? I’m asking on behalf of my best friend, who is currently having a very difficult time in hospital. I expected there would be accessible support like this, but so far all we’ve received are booklets and website addresses.
She doesn’t need palliative care, nor can she physically call or attend workshops or group sessions. She doesn’t need a welfare advisor at this stage either. What she really needs is someone who understands how the healthcare system works and can act as her voice—without the emotional charge of people close to her. She needs help challenging or understanding her options and choices, and support in planning ahead for the treatment.
Most importantly, she needs someone she can openly share all her fears and worries with, without feeling like she’s being negative or manifesting the worst outcome.
I’m looking for someone who can be a single point of contact to help navigate the complexities of cancer care—dealing with issues like negligent treatment, finding appropriate support services, and offering emotional guidance. Ideally, she would like to work with someone who can manage all of this without having to go through multiple people or organisations.
Has anyone had experience with this type of advocate, either through the hospital system or independent services? Any recommendations would be greatly appreciated.
