Strange vaginal sensation after hysterectomy

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Hi,

I am nearly 7 weeks post op, after an hysterectomy for endometrial cancer.

I am healing well and slowly feeling better.

But, I have had an odd and uncomfortable sensation since about week 2, it was infrequent and random. But is now more frequent, for the last 3 days.

It's at the entrance of my vagina, feeling like I am squeezing all the time. I am not.

Any ideas what this might be?  

Thank you

It

  • Hi Lilystar

    Thanks for getting in touch with Macmillan Cancer Support. My name is Sarah one of the Cancer Information Nurses on our support line.

    It is good to hear that you are healing well and slowly getting better after your recent surgery for endometrial cancer. It can take about 6 to 8 weeks to fully recover after a hysterectomy.

    It would be difficult to know from the information you have given what is causing these symptoms. With new and worsening symptoms, it is always important to report these to your hospital team. You may find it helpful to speak with your clinical nurse specialist at the hospital. If you are unable to speak with your hospital team, we would advise you get in touch with your GP.

    From your profile I can see you have joined our womb cancer forum. This can be a helpful place to reach out to others for support.

    I hope this information helps. Please feel free to get back in touch if you want more information or support.

    Best wishes,

    Sarah

    Cancer Information Nurse Specialist 

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email

    Ref/ SS/JD

    Sarah S-Macmillan Cancer Information Nurse Specialist
  • Thank you, I went to GP and have had 2 lots of antibiotics for a UTI, which haven't cleared it up.

    So am having a sample sent to see if there is an infection. If not then there will be some further investigations, to see what it could be.

    I'm a bit low at the thought this is. Something else wrong with me, waiting for thyroid biopsy and scan for suspected cancer.

  • My name is Alison and I am one of the Cancer Information Nurses with Macmillan Cancer support. Thank you for getting in touch with us and I hope you find the online community a helpful and supportive environment.

    I’m really sorry to hear that you’re dealing with so many health concerns at once. It’s completely understandable to feel low and worried about what might be happening. Waiting for test results and facing the possibility of more health issues can be incredibly stressful.

    It’s good that your GP is being thorough and sending a sample for further testing. Hopefully, this will provide some clarity and help guide the next steps. In the meantime, here are a few things that might help you cope:

    Stay Connected: Reach out to friends, family, or support groups. Talking about your feelings can provide emotional relief and support.

    Self-Care: Try to engage in activities that you enjoy and that help you relax, whether it’s reading, listening to music, or spending time in nature.

    Mindfulness and Relaxation Techniques: Practices like meditation, deep breathing exercises, or gentle yoga can help reduce anxiety and improve your overall well-being.

    Support Groups and Counselling: Connecting with others who have gone through similar experiences can be incredibly helpful. At Bupa through Macmillan there is an offer of up to 4 free remotely-delivered counselling sessions.

    Consider Talking, counselling and support groups for endometrial cancer survivors or seek counselling to help the process.  They can help you navigate these emotions and provide strategies for coping.

    Stay Informed: Keep in touch with your healthcare providers and ask questions about your health and treatment options. Being informed can help you feel more in control.

    Remember, it’s okay to feel overwhelmed, and it’s important to take things one step at a time and get help with how you're feeling.

    You’re doing the right thing by seeking medical advice and taking care of your health.

    Kind Regards

    Alison W, Cancer Information Nurse Specialist 

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email

    Ref/DT