Hello, I was given a diagnosis of SLL a year ago, and that diagnosis is still on the most recent letter from the consultant dated 25th August.
But I have gone into My MFT and the diagnosis listed on there is Chronic lymphocytic prolymphocytic leukemia syndrome. Can you explain to me please what is the significance of this change? It’s 2 months until my next checkup when Ican ask about it so I’d be grateful if you can help. Thank you
Mary
Hi Geum,
My name is Alison and I am one of the Cancer Information Nurses with Macmillan Cancer support. Thank you for getting in touch with us and I hope you find the online community a helpful and supportive environment.
I understand how concerning it can be to see changes in your medical records. Let me explain the differences and possible significance.
Small Lymphocytic Lymphoma (SLL) and Chronic Lymphocytic Leukaemia (CLL) are essentially the same disease, with the main difference being where the cancer cells are located. SLL primarily affects the lymph nodes, while CLL affects the blood and bone marrow.
Chronic Lymphocytic Prolymphocytic Leukaemia (CLL/PLL) is a more aggressive form of CLL.
(PLL) involves a higher proportion of prolymphocytes, which are immature white blood cells. This
form can progress more rapidly and may require different treatment approaches.
The change in your diagnosis might indicate that your condition has evolved from SLL to a more advanced stage involving more prolymphocytes. This doesn’t necessarily mean an immediate change in your health status, but it could influence your treatment plan.
It’s important to discuss this with your consultant at your next check-up to get a detailed understanding of what this means for your specific case and treatment options. As your appointment is in two months, it would be advisable to contact your Cancer Nurse at the hospital next week to discuss or even contact your consultant via their secretary.
Best Wishes
Alison W, Cancer Information Nurse Specialist
You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email.
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