Secondary mestatses bone cancer

  • 1 reply
  • 43 subscribers
  • 318 views

Hi I'm 45 . I was diagnosed with 2 different breast cancers in my left breast bk in May.  I had masectomy with lymph node biopsy . I was then told I needed more surgery then got sent for a body ct and it showed it had spread to my spine and hips  pelvis. 

I've been told there's no cure and if I have this injection to stop my ovaries I may last a year if not it'll be months but I don't want to spend my final month's hysterical in full blown menopause already been on hrt as couldn't cope with symptoms of menopause due to my mental health it made me very unwell mentally . I don't want to spend my final chapter of life like that but my oncologist doesn't understand and thinks I'm bring difficult why wouldn't I want more months even a year to live ...I do of course I do . Just not in menopause I know how it affects me and I won't be able le to cope...I'm completely at a loss and I'm looking for any support or advice u can give me x

  • Hi Rae79

    Thanks for getting in touch and welcome to the online community.

    My name is Paula and I am one of the Cancer Information Nurse Specialists on the Macmillan Support Line.

    I am sorry to hear about your diagnosis. I can imagine how difficult it’s been receiving this news and what that means for you. Getting a secondary diagnosis is never easy as it’s distressing and brings a lot of uncertainty for many people, especially when treatment options are involved. I am pleased you reached out to us.

    Here at Macmillan, we can give general advice and support. We are independent from the NHS and don’t have access to medical records so cannot give personalised information.

    I know you’ve already spoken to your oncologist and it has been upsetting for you to try and explain how you’re feeling. However, it may be worth trying to speak to the consultant again or your breast cancer nurse. It’s important to let them know your mental health suffered a lot previously due to menopause symptoms and you still struggle with this. Are there any other treatment options at this stage they can offer to manage your current diagnosis. You may find this link helpful.

    I know this is a challenging time for you, so it’s important that you don’t feel alone. Here at Macmillan, we offer a range of support and services you can access. You may find this link helpful to look at. We also work in partnership with BUPA to offer free counselling sessions.

    Breast cancer now also offer a range of support for people living with a secondary breast cancer including online events. Talking therapies can also help with your mental health and can help to explore ways to manage your emotions. Your GP can refer you for this service.

    We have an online forum you might find helpful to look at.    

    You can also talk to one of our nurses on the support line. Sometimes giving us a call can help. It’s a free phone number on 0808 808 0000 and we are here 7 days a week, 8am-8pm or email us. 

    I hope this information has been helpful, please don’t hesitate to get back in touch.

    Ref: PW/SB

    Paula-Cancer Information Nurse Specialist