Stage 3 Ovarian Cancer - to extensive for surgery & thinking of refusing chemo

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My Mum is, or rather was until recently, a spritely 77 year old lady. She was diagnosed with stage 3 Ovarian Cancer, last Friday 4 October. We're told it's too extensive, throughout her pelvic region though not impacting on any other organs, for surgery. However, they can offer chemo. If it shrinks enough, surgery may be a later option. Well, in short she's comtemplating refusing the treatment. Says she's had a good life & she'd rather end it on a good note, than end up suffering further pain, side efffects & ... Well this one of the problems, we don't know what to expect! We're a small family (Im an only child, with an only child) & have been lucky enough to not have any experience of cancer to now. Second problem is that, despite over 50 years of strong & loving marraige, my Mum doesn't know how to tell my Dad whats on her mind. He's always been the one to make all the decisions & she knows he'll expect her to fight it all the way ... regardless of what this entails. I'm the only one who knows what Mums thinking. She's relying on me, not just for support but for advice too & I haven't a clue where to start. Any advice would be so greatly appreciated ... as would links to support.

Many thanks

Amanda 

  • Dear igotyou

    Thank you for getting in touch with us, and welcome to our online community. My name is Annerose I’m one of the Cancer Information Nurses here at the Macmillan Cancer Support line.

    I understand your mum has been diagnosed with stage 3 Ovarian cancer and has been offered chemo with the possibility of having surgery at a later date. However, she is unsure if she should accept the treatment.

    Deciding on whether to accept chemotherapy can be a very difficult decision to make but ultimately has to be the right decision for your mum.

    It is important to take time to make a decision. This will be hard if doctors want to start treatment soon. But it is important that your mum has time to think about the information she has and ask more questions if she needs to. 

    Many people are frightened at the idea of having chemotherapy, particularly because of the side effects. But these can usually be controlled with medicines. Treatment can be given for different reasons and the potential benefits will vary depending upon the individual situation.

    Your mum’s consultant or if she has one, her Clinical Nurse Specialist can help her discuss this and answer any question she might have about going forward with or without treatment, before she decides what she wants to do.

    No one can say exactly what will happen in the future and it is likely there will always be some uncertainty. Talking about her wishes can be a great help, getting as much information form the team about possibilities, pro’s and con’s with and without treatment might help your mum find questions she wants to ask and ultimately in the decision making.

    It is good to see that you are a close-knit family, but it can be difficult to talk to loved ones about a cancer diagnosis and the emotion that come with it. Our information on ‘talking about your cancer diagnosis’, and ‘supporting someone with cancer’ might be useful for you and your parents.  

    It might help for your mum to give us a call.  Talk through how she is feeling and get some emotional support. 

    You are doing a great job supporting her, but it is also important that you look after yourself too. Supporting your parents and the emotional demands can be a real struggle.

    Please know that we are here for you as well as for your mum and Dad. You are welcome to call us. Often it is easier to discuss things over the phone. The number to call is 0808 808 0000 and we are open from 8am to 8pm every day. Press option 3 to speak to a nurse.

    You can also check our webpage to find details of support and information organisations in your area.

    An organisation called Maggie’s offers psychological support and support groups for friends and families of people with cancer. They also offer online gentle exercise sessions, art therapy and relaxation sessions. They can offer additional support to you and your family at this difficult time.

    I hope this has been helpful, but please don’t hesitate to get back in touch if you need any further information or support.

    Best wishes and take care, 

    Annerose (Cancer Information Nurse Specialist) 

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email. 

    Ref/ HeP