Late side effects of Radiotherapy

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Good afternoon, I was diagnosed with HER2+ breast cancer at the beginning of 2019 and received 8xFEC-T, 23 of radiotherapy, followed by surgery. In May of this year the affected breast began to look inflamed across the bottom half, that area hardened and the breast became swollen, particularly underneath my arm. I also had pain in my shoulder blade. I was checked over at the Breast Unit where a Mammogram and CT Scan thankfully showed no return of the cancer. I was told it was late side effects of radiotherapy. These symptoms haven’t gone away, in fact in the last 10 days they have increased to the point where I have pain in my shoulder/ribs when I breathe, pain in the breast, mainly under my arm and a general feeling of exhaustion to the point where I’m struggling to get through the day. At work I run out of breath when speaking to visitors. I contacted the Breast Unit yesterday but they wouldn’t see me without a referral as 5 years have passed but recommended getting the pain on breathing checked in case it was a PE. I contacted my GP who referred me to the local Urgent Treatment Centre where I spent 8 hours last night waiting for a blood test, which showed no markers to indicate a clot. I will ask to see my GP again but I wondered if you had any advice as to what might be going on, if this is common, and if there is anything that can be done to relieve these symptoms as I’m finding it pretty tough at the moment. Many thanks, Vanessa.

  • Dear Nessa46,

     

    Thank you for contacting Macmillan and welcome to the online community. My name is Denise, and I am one of the Macmillan Cancer Information Nurses on the helpline.

    I am sorry to read you are experiencing some concerning symptoms. This must be a very difficult time for you.

    Unfortunately, as we are not part of the NHS and we do not have access to medical records, we can’t diagnose on this platform. We would suggest seeing your GP or call 111 as soon as possible for an assessment as your symptoms are worsening.

     Pain, swelling or redness can be a sign of infection for example skin infection such as cellulitis. If it is an infection, antibiotics may need to be prescribed.

    If you are experiencing breathing difficulties or chest pain, please attend your nearest accident and emergency or call 999 if you are unable to get transport.

    It is possible to have rare late effects of radiotherapy such as chronic radiation dermatitis or lymphoedema but it is always advised to get this checked and confirmed by a medical professional first. You can read more about late effects here. It is important to get an accurate diagnosis as the management of those are very different.

     

    I hope this information helps. Please do get back in touch with us if you have further questions. The Macmillan Support Line offers practical, clinical, financial, and emotional support. You can call us free from landlines and most mobile phone networks on 0808 808 0000, you can also chat to us or email us 7 days a week, 8am – 8pm.

    Kind Regards,

    Denise

    Cancer Information Nurse Specialist

     

    Ref: DK/KE