Surgery or not for iliac lymph node tumor?

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I am a prostate cancer who has undergone radical prostectomy back in 2023. Later scans revealed BCR and there were two subcentric lesions on rt iliac lymph node.

Radiation was recommended and i did a 6 week treatment.

Post radiation i was on surveillance for psa. Psa was creeping up after hitting a nadir of 0.03.

The psa dt was turning out to be less tjan 3 months and my onco asked me to do a psma scan.

Last week i did a psma scan and there is a 6 mm tumor in same rt iliac lymph node. So radiation actjally failed to kill the tumor.

So my onco onco surgeon ois of the opinion to do PLND, and remove the lymph nodes.

He feels its necessary and can bring down psa and adt wont be needed for quite some time.

But PLND has its own after effects like lower limb edema etc.

So my dilema is should i get these lymph nodes removed once and for all and live with the side effects or should i seek another opinion and see if ADT can shrink the tumor.

Would it be risky to leave the tumor as it is coz that can metastasize to other parts? 

Any suggestions?

  • Hi Warrior68

    Welcome to the online community. My name is Sarah one of the cancer information nurses on our Macmillan support line.

    Understandable that you have questions about your prostate cancer treatment. As we are not part of the NHS and don’t have access to your medical records. It would be difficult for us to offer any specific suggestions.

    Whilst you are making decisions about treatment, you can ask for a second opinion from a hospital consultant or GP.

    Both your consultant or GP can refer you for a second opinion, either on the NHS or privately. This can allow you to get an independent second opinion. Some people do their own research to find the name of a consultant they think they would like to see. 

    For funding reasons, your current consultant may not be able to refer you to some specialists. They may recommend talking to your GP about getting a second opinion from another specialist. You may worry that asking for a second opinion will upset your consultant. But this is unlikely to happen. Doctors often ask for the opinion of a colleague, especially for complex cases. 

    When you are referred for a second opinion, your medical information will be sent to the new doctor or specialist. This will include any scans, test results and details of any earlier treatments you have had. If needed, the new specialist can ask for information from the original doctor and hospital. 

    After you have had your second opinion, if you want to be treated under the second doctor, this will need to be formally agreed and arranged with them.

    Finding out treatment has failed will be difficult and most likely feel overwhelming. There is no right or wrong way you should be feeling just now. You probably already have been having a range of emotions.

    Sometimes it helps to talk things through. You may find it helpful to speak with one of our nurses on the support line on 0808 808 0000.

    Also our online Prostate Cancer Forum may also offer you some further advice, information and friendship from others in similar circumstances. Many people find this kind of support invaluable at times like this.

    I hope this information helps. Please feel free to get back in touch if you want more information or support.

    Best wishes,

    Sarah

    Cancer Information Nurse Specialist 

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email

    Ref/ SS/JD

    Sarah S-Macmillan Cancer Information Nurse Specialist