Overwhelmed

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My mother in law was diagnosed with stage four malignant melanoma back in April of this year. It’s treatable but not curable. Since her diagnosis she has declined rapidly, she is now bed bound. She had a severe liver infection for which she was hospitalised for 2 weeks. Since she has been home she has continued to decline. She refuses any help from outside although she has district nurses in once a day to change her dressings on her tumour on her foot. She isn’t eating, hardly drinking, she struggles to manage her medication and has recently in the last couple of weeks become severely confused. She was confirmed to have a water infection which she has had two lots of antibiotics for. However she is still really confused, unable to remember certain things and it’s becoming very difficult to get her to understand what medication she needs and that she can’t just take them herself as she is confused all the time. She has crisis medication available however she has only had one does administered 7 weeks ago and none since. We are all struggling on what to do for the best and how to help her further. She was having immunotherapy however this was stopped due to it causing the severe liver problems. The hospital wants her to have some form of hospice care in the home but she has to agree to this and as of yet she hasn’t. Can any one offer any advise please how we can help her further. Many thanks. 

  • Good morning Stina1982,

    Thank you for getting in touch and welcome to our online community, I hope you find it supportive. My name is Helen and I am one of the Cancer Information Nurse Specialists on the Macmillan Support Line.

    I am sorry to read your mother-in-law has stage 4 melanoma and that she is declining rapidly. I can only imagine the impact this is having on you too.

    There are a number of services and avenues of support in the community when someone is being cared for at home. As you mention she has become severely confused, she’s bed bound, struggling with medication, hardly eating and drinking, I would recommend contacting her own GP practice for an assessment today.

    If she has any new, worsening or changing symptoms today and her own GP is unable to assess her, then I recommend you call the district nursing team she’s known to, NHS 111 or 999.

    There could be a number of reasons contributing to her decline which she would benefit from having a new medical assessment. If she hasn’t already been referred to a specialist palliative care nurse, or hospice at home team, her GP can help with this.

    If she is struggling with managing her own medication, her GP can also review these and may consider making changes to non-essential medication. They can also liaise with the pharmacy to dispense them in a blister pack or dosette box if this would help.

    Caring for someone at home can be challenging for family members and managing to take care of yourself can be difficult.

    We understand the emotional effects of caring and I would encourage you to reach out to us. Talking things through can be an opportunity to share how you’re feeling. It also helps us gain a better understanding of what’s happening and give you the best guidance on what to do.

     

    I hope this information is helpful but if you have any more questions please don’t hesitate to get back in touch.

    Best wishes,

     

    Helen, Cancer Information Nurse Specialist 

     

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or email us. 

    Ref/HeP/CC