problem after Ivor lewis operation

Hi Andy,

Thank you for contacting Macmillan Cancer Support. My name is David, one of the Cancer Information Nurse Specialists on the Macmillan Support Line.

I am sorry to hear of your current symptoms following your Ivor Lewis open surgery. This is also known as a trans thoracic oesophagectomy.

Most people have some problems with eating following major surgery like this. But we would advise to err on the side of caution.

Because your current symptoms are persisting, we would advise you contact your Upper GI Clinical Nurse Specialist (CNS) in the first instance so they can review your symptoms.

Indigestion or reflux (a backward flow of digestive juices into the oesophagus) can happen after stomach surgery. This can cause pain and inflammation of the lining of the oesophagus. Your GP or cancer doctor can prescribe antacid medication to help with this.

Avoid fizzy drinks, alcohol and spicy foods, as they may make your symptoms worse. Lying down may also make symptoms worse.

After eating and drinking, try to stay sitting up for at least an hour. When you lie down to sleep, try using pillows to raise your head slightly.

Indigestion can also be caused by wind trapped in the digestive system. You can reduce wind by drinking peppermint water or taking charcoal tablets.

Eating after treatment for oesophageal cancer can be difficult and can take a few months to a year to adjust to the changes in your digestive system.

It may also be worth asking for a further consultation with a Dietician.

Sometimes people find strength in talking to others who may have similar experiences. The Oesophageal Patients Association (OPA) may be a good place to start.

Alternatively, Guts Charity or the Ochre Charity are also good sources of information and support.

If there is anything else we can help you with please feel free to get back in touch.

Best wishes

David, Cancer Information Nurse Specialist

You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email.

Ref/**

DT/LA

Copy of your original e-mail to Macmillan Cancer Support

I am hoping you can help me . I had chemo for a couple of months before the the Ivor lewis operation to remove oesophagus followed by two more months of chemo. last infusion was over two months ago. 

I am having problems with like tapped air after I eat or drink. This is quite painful and I am trying to release air by burping but it just won't clear . it seems to be around the Adams apple area and I am finding it hard to eat properly . I have had two swallow tests but they say I am swallowing ok. this is starting to be a problem for me as I am hungry but scared to eat because it is so uncomfortable. it seems to be a constant thing now even without eating.

Do you know if anyone else had this problem and if so how did they overcome it . I have asked my gp and nurses but no-one has an answer .

Thankyou for you time

Andy