Breast Cancer Reconstruction

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Hello, I been diagnosed with HER2 and DCIS in the same breast. I've been informed I must have a mastectomy and have been recommended a bilateral TUG reconstruction with the secondary option of an implant reconstruction. The reconstruction surgeon has informed me that for the latter (which she advises against), she would also put an implant on the healthy side in order to reach some kind of symmetry. However, I am told the two implants would react differently to any changes in my body and will not look at all symmetrical. On the other had, my mastectomy surgeon advises against having the bilateral TUG procedure due to its complications and advises a straight forward mastectomy. Personally, I cannot face the bilateral TUG, or losing a breast and going flat on one (or even both) sides. I have been struggling with mental health, self-esteem and body confidence my whole life, the last 7 years have been particularly traumatic and in the last 2 years my whole life has fallen apart. I am newly single, feeling utterly unlovable and am going through this process alone with the awful voice inside saying, 'Nobody will want you after this'. I am not scared by the cancer itself, but by having to face life afterwards. I have requested a bilateral mastectomy with immediate reconstruction. My team won't agree to this, but I can't fathom facing life following the options I have been presented with. Please help!!!

  • Good afternoon CLB78,

    I’m Helen, one of the cancer information nurses that works on the Macmillan support line.

    Thank you for getting in touch and welcome to our online community, I hope you find it supportive.

    I’m really sorry to read you feel your life has fallen apart over the past 2 years. I completely empathise with how you’re feeling and the impact of the decision making around breast surgery and reconstruction is having on you.

    Planning treatment for breast surgery and reconstruction can be challenging. There are many factors to consider, including what matters most to an individual, the associated risks involved, the recovery and also the outcome of the surgery in the long term.

    As you have received different opinions from your current breast care surgeons, you may wish to consider getting a second opinion. If you have a breast cancer clinical nurse specialist in your hospital team, they are also there to answer questions about your options and discuss how you’re feeling.

    As we haven’t access to your NHS medical records, you are very welcome to call us for further discussion and support. Talking things through with us can help give you better guidance and information which is relevant to your current situation.

    In view of how you’re feeling, we can also support you with your emotional wellbeing and signpost you to other services which may be available locally to you.

    As part of the online community, we have a breast cancer forum which you may find helpful to join and seek support from others who are going through a similar experience to you.  

    I hope this information is helpful but if you have any more questions please don’t hesitate to get back in touch.

    Best wishes,

     

    Helen, Cancer Information Nurse Specialist 

     

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or email us. 

    Ref/HeP/DS