How do I know if my chemo dose is correct?

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Good morning,
I was diagnosed with Lobular Breast Cancer earlier this year and I'm now part way through adjuvant chemo.
I have completed 3 x EC and had 1 of 9 paclitaxel.

Before my first EC the chemo nurse noticed that I had lost a lot of weight and that the chemo dose needed to be decreased as it was based on my heavier weight.

Over the months I have lost even more weight but the chemo volume is still being based on my weight from when the dose was adjusted  several months ago. 
I am worried that I might be receiving too much chemo.

Could you please tell me how to work out the dose for paclitaxel according to my weight and height.

I have questioned the nurses but they told me that it's still in range... I am very anxious about everything at the moment and need the reassurance that the dose is fine.

Many thanks

  • Dear DeeDee60

    Thank you for contacting our online community for support. My name is Joanne, and I’m one of the Cancer Information Nurse Specialists. I can see that you have joined our breast cancer forum and chemotherapy forum, and I hope you are finding them helpful.

    It can be worrying when things change during your treatment such as weight loss and you are correct that this can have a knock-on effect on your treatment such as the dose. In general chemotherapy doses are calculated using your height and weight to work out the total body surface area, however, this isn’t the only factor. This gives a basic dose which may be changed depending on blood results such as kidney and liver function and how well your bone marrow has recovered. Also, some for some chemotherapy calculations clinicians are moving away from using body surface area to calculate drug dosage but are using standard doses as there is growing evidence that this is safe to do and does not compromise outcomes. For these reasons, we would not recommend you try to calculate the dose yourself.

    In practice most hospitals use a system called ChemoCare which is an electronic prescribing system for chemotherapy. When any treatment is changed, in this case from EC to Paclitaxel all your information will need to be recorded again so your new weight should be in place. Any prescription generated from this system will have your height, weight and blood results printed alongside your prescription. For peace of mind, you could ask your consultant when you are next in clinic to show you the information and talk you through the calculations relevant to you. Alternatively, you can ask the chemotherapy nurses if you can see your prescription next time you go.

    I hope this information helps. Please feel free to get back in touch if you want further information or support.

    Best wishes

    Joanne F,

    Cancer Information Nurse Specialist.

    You can also speak with the Macmillan Support Line team of experts by phoning 0808 808 0000, calls are free, and lines are open 8am-8pm, 7 days a week, or you can send us an email or use webchat.

    Ref JF/RH