morbidity at end of life following stage 4 melanoma

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My husband is starting immunotherapy in 2 weeks for metastatic melanoma of the lungs. He has no other lesions. One lung has had the lesion removed for biopsy. He has no symptoms. It was an incidental finding. He's otherwise fit and healthy. 

He's very hopeful about immunotherapy and has been told without it he would have about 15 months, with it (if he tolerates it well) 5+ years and from the research we've done some doctors are talking about it possibly being a cure. 

What I would like to know is how much of that 5 years (if this turns out to be the maximum, I know it's not exact and everyone is individual) is he likely to be ill and dying?

I suppose there isn't one answer to this as other factors may kick in or side effects from the treatment could change things but I guess I am trying to work out how many years of 'normal-ish' living we might have if he tolerates the treatment well and it's effective.

Many thanks

  • Hello Squeak

    Thanks for getting in touch and welcome to the online community. My name is Karen and I am one of the Cancer Information Nurse Specialists on the Macmillan Support Line.  

    I’m sorry to hear that your husband has recently had a diagnosis of metastatic melanoma. This must be a difficult and uncertain time for you both and you may be feeling a range of emotions.

    It’s understandable you have many questions about what might happen in the future and when. It’s positive that your husband is hopeful, has no symptoms and is otherwise fit and healthy. This will help your husband to cope with the immunotherapy treatment.   

    Your husband’s medical team will continually monitor and review his response to treatment. There are often many different lines of treatment that could be options for your husband in the future and support to control symptoms to help to maintain his quality of life.   

    Everyone is different in how they might cope or respond to treatment. Unfortunately, we don’t have access to your husband’s medical records and can only provide general information. Your husband’s medical team or clinical nurse specialist are best placed to answer any specific questions you have at any stage.  

    Sometimes, we can explain and support more in a telephone conversation. If you have further questions or want to talk through how you are feeling, please don’t hesitate to contact one of our nurses on the support line.

    I can see that you’ve joined Melanoma forum and Carers forum, I hope you are finding these spaces welcoming and supportive.  

    The charity Melanoma in Focus also have a support line and access to support groups.

    This information about supporting someone with cancer may be helpful, it’s important you have the support you need too. I can see from your profile that you have a number of family members who have had/have cancer and that your dad is also currently having investigations. We are here for you, Squeak, please don’t hesitate to contact us again.

    I hope this information is helpful. The Macmillan Support Line offers practical, clinical, financial, and emotional support.

     

    Best wishes

     

    Karen, Cancer Information Nurse Specialist 

     

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email

     Ref/Khe/EM