It was determined that treatment was required. Of the options radiotherapy was unlikely to stop growth so I signed consent form in Feb 2023. It was supposed to be fast tracked but to date still not done. They offered radiotherapy but since there’s a 50% risk of another tumour I didn’t want to add to those odds - especially having been told was unlikely to stop growth. I wrote in October 2023 stating I still wanting the operation and as they’d given the risks of leaving it I should like it expiated asap. I have heard nothing back. They known I am profoundly deaf so can’t phone - but I seem to get nowhere. I now have intermittent “ice water” sensation down one thigh, a pressure sensation in my head near the posterior fossa tumour, and I’m scared they will leave it too late. Previously they had said could remove it all. But if near artery and brain stem this may no longer be the case. I can’t seem to get anyone to respond - can you advise please?
