Treatment decisions for Metastatic Melanoma of the Lung

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Hello,

finally my husband has his first appointment by phone with the oncologist next week.

We already have a list of questions and have done our own research on likely treatments. The nurse says it's likely he will be advised to have immunotherapy. He currently has no symptoms at all. There were 2 lesions found on the lower lobes left and right. The smaller one was surgically and completely removed for the biopsy. All other organs are clear.

QUESTIONS

1. We understand that there are likely to be other cancer cells/lesions in the body that have not yet been able to be detected on scans etc. However, given that there is only one lesion now in the entire body, we're wondering what the pros and cons are of having it surgically removed as apposed to drug therapy? With immunotherapy we are told he would be monitored every 3 months to see if the treatment is effective or not. Could they not take out the lesion then scan again every 3 months to see if it reoccurs then start drug therapy if appropriate?

2. Where can we see stats on people who choose not to have treatment? There only seem to be stats comparing different treatments.

3. Where can we find stats on people dying with cancer but not from it? For instance, with prostate cancer it is well known that men often die with it, not from it and in the past never having known they had it.

4. Our initial appointment with the cancer nurse yetserday didn't touch on our mental/emotional needs or that of our family. My husband has been referred to QE in Birmingham rather than  our local hospital so we don't seem to be able to access local support at the moment. Is this right? I have recommended our 5 children check out your website and make use of the helpline.

Many thanks, Squeak Blush

  • HI Squeak

    My name is Kathryn, and I’m one of the Cancer Information Nurse Specialists. I can see that you have joined the melanoma forum and carers only forum. I hope that you are finding the online community helpful and supportive.

    I am glad to hear that you have already been doing your research and have some questions that you plan to ask your husband’s team. You may want to glance at our questions to ask your healthcare team and treatment decisions information, just in case there is something additional to what you already have on your list.

    The multidisciplinary team (MDT) for melanoma will have met together to discuss and decide on possible treatment options for your husband. If there are different options available, your husband will have the opportunity to discuss the benefits and risks of each one before he makes his choice with his team.

    As a charity we do not have access to medical records and are not able to say whether in your husband’s situation that surgery is an option and what the outcome of this would be. This is however a question that your husband’s team can answer.

    Your husband’s oncologist should be able to give statistics specific to your husband’s situation for those that choose not to have further treatment. If this is something that your husband is considering he can discuss those with his team to make a fully informed choice about this option. I am not aware of a resource that gives the survival rate for those who choose not to have treatment for an advanced melanoma.

    The Office for National Statistics has information about cause of death but I couldn’t find information about secondary causes. I’m not aware of where you may find that information as it would rely on a secondary cause of death being recorded.

    I am unsure where in the country you live but you may find In Your Area on our website helpful for finding local support that your husband and the family can access.

    Your husband may be eligible for up to 4 free counselling sessions following a wellbeing assessment through our partnership with Bupa.

    Maggie’s has several centres across the country you can visit their website to see if there is a centre near you where both your husband and the family can access various support.

    Melanoma UK have a community which offer social, emotional and practical support. Melanoma Focus also have a helpline opening times vary but you can find further information here.

    I hope this information helps. Please feel free to get back in touch if you want more information or support.

    Best wishes,

    Kathryn,

    Cancer Information Nurse Specialist 

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email

    Ref: KR/TT

  • Thanks Kathryn. We've spoken to the consultant and hes' been recommended Immunotherapy and has to decide between two options. We're speaking to the cancer nurse on Monday to go through the treatment plan and side effects. Surgery is off the table at the moment. Prognosis without treatment 1 -2 years. there were no surprises really as we had already done so much research which we've found helpful. Thanks for the links. I knew most of them but will check out the others and pass on to family. Blush