metastatic colorectal cancer

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Hi my husband has been diagnosed with metastatic colorectal cancer that has spread to his liver and the lymph nodes tracking towards his aorta, he has so far had 2 courses of chemo, both courses have given him problems, the first affected his heart so had to be changed, the second gave him chronic diarrhoea that he had to be intravenously rehydrated.

he is now concerned for his third course, amongst all this I have some questions, firstly he has a couple of lumps in his groin that have become extremely painful, I'm assuming these are lymph nodes but not sure if it is normal for them to hurt ?

He is generally fed up with feeling so ill with the chemo, he wants to have a few drinks, should I be putting my foot down or letting him drink ?

I am struggling with all of this, he isn't the easiest of patients some times and my best is nowhere near good enough for him, and knowing how much he is enduring isn't easy either, our consultant hasn't given us any kind of time frame which we are both struggling with, its like he's a ticking time bomb but I don't know how fast I have to run, I'm trying to get things in order and also trying to do more things together while we can, I sometimes feel like I'm running a marathon backwards, Is it the right thing to ask the consultant for a time frame ?

Sorry, I really don't know who else to talk to

  • Hi TJ1966

    I am sorry to read your husband has metastatic bowel cancer, experiencing chemotherapy side effects and you are both struggling with this. We can only imagine what you are going through.

    My name is Sarah one of the Cancer information nurses on the Macmillan support line.

    Coping with side effects to chemotherapy can be difficult. Your husband’s team will make decisions about his next treatment and can sometimes reduce the dose or add in other supportive drugs to help reduce diarrhoea. Encourage your husband to write down his concerns about his next dose of chemotherapy to ask his team at the next appointment.

    As we don’t have access to your husbands notes his clinical nurse or consultant would be best placed to assess new symptoms such as the lumps in his groin. Lymph nodes can be inflamed or painful for different reasons.

    It is understandable your husband is struggling after having such difficult chemotherapy side effects this can impact emotions for both you and your husband. I am sorry this has made you feel that your best is nowhere near good enough for him. Illness can add a lot of pressure to a relationship.

    It is best to talk through with your husband’s team about having alcohol whilst on chemotherapy.

    It is a good idea to talk to someone other than the person who has cancer about how you feel. Talking about how you feel can help you cope with your emotions. You may find it helpful to call through to our support line to speak with one of our nurses or emotional support team. Talking through with someone one to one can sometimes give you space to explain more about how you are feeling. When you are supporting someone with cancer you often don’t think about support for yourself, but it is important.

    I can see that you are new to our online community. You may find it helpful to talk with others who can understand some of what you are gong through. Our online community has a friends and family forum for those supporting loved ones with cancer.

    Knowing your husband’s prognosis or timeframe can help you both make plans and decisions about the future. Although everyone is different, your husband’s team should be able to explain what they believe your husbands time frame is expected to be. Be honest with them about how much you would like to know. Writing down questions before hand can help.

    You may feel like you are running backwards but try just now to take things a day at a time. Get some support from your husband’s team about prognosis, his new symptoms and about the next chemotherapy session. Some people find it helpful to use mindfulness to help focus on the present, you may find this information about coping with day to day life helpful.

    I am glad you felt able to reach out today and I hope this information helps. Please feel free to get back in touch if you want more information or support

    Best wishes

    Sarah

    Cancer information nurse specialist

     You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email

    Ref/HC/SS

    Sarah S-Macmillan Cancer Information Nurse Specialist