End of treatment advice

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Dear Team,

Firstly, and most importantly, thank you for all that you do. My sister had her first appointment with your team this week in Northallerton after cessation of treatment and it went better than she had hoped. Since her oncologist has revealed that combined treatment was not having any further impact on her lung cancer, we have moved suddenly to a summer of her being 'well' but clearly moving into palliative care. She has shared some details with me, but I am pretty unsure what to expect and what this will present for us now and in the coming weeks/months.

My mother's support has moved gradually more to me and I know this will continue, including a hip operation for her at the end of this month. My brothers are sporadic in support, and although my brother in law is rock-solid, I simply don't know what's coming. I have no idea how the disease will affect her and how quickly, how much to prepare for her pain and what time we might have; she has declined knowing any time scale. I respect that entirely but have to have some sort of idea how this cancer is going to progress so that I can organise work, family, Mum, care... it feels overwhelming because I have no reference points. My sister is immensely strong, ridiculously 'healthy' looking, although underweight and sleeping very poorly. She is 62 and her cancer is in both lungs, well-established and unresponsive no to chemo, both oral and vein-delivered.

Can you help me? Are there time scales which can guide how I act and react? I would really appreciate some support, if possible.

My thanks,

Anna  

  • Dear Franji,

    Welcome to our Online Community. My name is Fiona and I’m one of the Cancer Information Nurse Specialists here on the Macmillan Support Line. Thank you for your kind words.

    I’m sorry to hear that your sister has advanced lung cancer and that treatment has now stopped. This must be a worrying time for you all, especially if you have the added concern about taking on more of the caring role for your mum.

    It is often difficult to predict how long it will be before someone’s condition starts to change; sometimes people feel better for a spell once treatment stops. There are some changes that may happen as time passes that can give you an idea that she is less well which should help you make some plans, however this is different for everyone.

    If your sister is worried about her weight she could talk to her team or GP about a referral to a dietician, however you may find that she would rather just eat what she feels like and when she can, rather than focus on this. Our building-up diet information might be useful.

    Being unable to sleep can be distressing. Your sister could ask her GP for some night sedation that might help. We also have information here that she might find helpful, including a link to an App called Sleepio, that many people find effective.

    Not everyone with cancer experiences pain, however if she develops any new symptom she should discuss this with her GP so that she can get the right treatment early to keep symptoms under control. Most GPs are very skilled at managing pain and other symptoms and will be able to refer her to her local palliative care services when needed.

    Supporting someone you love with cancer can be very difficult so please do take time to look after yourself. We have a very supportive Online Community which you might find helpful; our Carers Forum might be a good space for you.

    As your sister’s condition changes it can feel frightening and overwhelming, so please do give one of the nurses a call. Talking things through may feel better for you and we’re always happy to help. We often find that we can help people more after doing this as it allows us to ask questions about your individual situation.

    I hope this information helps to guide you.

    Best wishes,

    Fiona S

    Cancer Information Nurse Specialist

    Ref: FS/LM

    Fiona
    Cancer Information Nurse Specialist

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email.

     

    Ref/FS