Struggling with swelling in the legs, especially the left side after surgery twice for lung cancer.

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I was diagnosed with lung cancer last August and had keyhole surgery for three wedge resections and removal of some lymph nodes in September. I had a recurrence in March and required an upper lobectomy and wedge resection on lower lobe by open surgery in May with more lymph nodes removed. Chemo has been ruled out as the cancer cells have no receptors. However, since last year I have been troubled with swollen legs, especially on the left side. Since surgery in May the swelling has been worse, mainly my left Knee and thigh. The consultant said it is not connected to the surgery,. i saw a heart nurse for tests which were normal. I started Ferucimide but had to stop after three weeks as it was affecting my kidneys. I've tried lymph massages and trying to do exercises for swelling using essential oils. Feet up constantly, even elevated in bed but nothing seems to improve the situation and it seems to be getting worse  slowly. I'm really struggling to walk now with the pain as I also have osteoarthiritis. An xray did highlight the swelling in January but Consultant and GP don't seem to be bothered. 

  • Dear JulieJ1.

     

    Thank you for contacting Macmillan. My name is Denise, and I am one of the Macmillan Cancer Information Nurses.

    I am sorry to read you have been diagnosed with lung cancer and had to undergo several surgeries and that you struggle with your mobility and pain but getting no useful response from your GP and consultant.

    As we do not have access to NHS records it is difficult for us to know what exactly could cause the swelling and the pain. It is reassuring your heart tests came back normal.

    There are several reasons why your knee and thigh might be swollen and painful and indeed this could be due to something else rather than the cancer diagnosis and surgery. Although we know it is difficult these days, but it is important you persevere and seek further advise from your GP on this matter. This will possibly need further investigation and adequate pain relief.

    You have mentioned you have been diagnosed with osteoarthritis. If you have a rheumatologist, you can also contact the rheumatology department for advice.

    I hope you find this information helpful. Please do get back in touch with us if you have more questions. The Macmillan Support Line offers practical, clinical, financial, and emotional support. You can call us free from landlines and most mobile phone networks on 0808 808 0000, you can also chat to us or email us 7 days a week, 8am – 8pm.

    Kind Regards,

    Denise

    Cancer Information Nurse Specialist

     Ref: DK/KS