Cystscopy

1 reply
41 subscribers
209 views

Hi all hope all doing very well

idk if I’m right place or no but I want some helps I’m 29 years old male start having 2 UTIs last year ever since uti I start have hung frequent urination that come and goes maybe one a week or maybe once a month doesn’t hurt or anything no blood too just gotta go each 30 min or hr I usually train my bladder to stay longer and it does work also I have done 20+ urine test all negative also 1 urine cytology negative too ct scan negative too x ray and ultrasound all clear negative so went to urologist this year done uroflow test for me and my uroflow was weak but I never notice my urine flow is weak anyways Urology ask for cystoscopy he thought I might have urethral stricture .

i did cystoscopy urethal is fine but once they in bladder they/me saw 2 flat dark red spot nothing around it nothing on top it ask the urologist who did the scope for me he said idk what that’s ! I said cancer or something he said don’t think so we gonna take pic and send it to ur main urologist he will decide for boipsy or no but I think he won’t do it

On report says

two small < 1cm dark red flat round lesions in left bladder (lateral), smooth otherwise and nil mucosal lesions

i saw it it look like small red round dot nothing on top of it nothing around it just small red flat round dot not inflammation around it too

guys im really anxious at the moment I really wanna know the truth of this my wife she’s pregnant of our first child I just got married last year too

Liz D - Macmillan 10 months ago

Dear Julian29,

Thank you for reaching out for information and support following your cystoscopy to investigate your urinary symptoms.

Waiting for results or an opinion from a more senior doctor is unbelievable hard, especially when there are other happier and exciting things happening in your life.

Many people feel anxious while they are waiting. You may feel like you have no control over what is going to happen to you.

There is no right or wrong way to deal with these feelings. Some people find it helps to carry on with their usual activities as much as possible. Continuing with everyday activities, such as going to work, can be a welcome distraction from worrying. Other people may feel they cannot concentrate on anything else.

At the moment, we don’t know what the red flat lesions in your bladder are. The urologist, who performed your cystoscopy has very sensibly sent a picture to a more senior colleague for a second opinion. If that doctor has any concerns, they will suggest a further cystoscopy and biopsies.

If you don’t hear from your urology team within a week or two of your cystoscopy, you could phone the urology secretary to ask when you will have some information.

NHS England has introduced a new target called the Faster Diagnosis Standard (FDS). The target is that you should not wait more than 28 days from referral to finding out whether you have cancer or not. It may be worth keeping an eye on your waiting time and if you are approaching 28 days, speak to the PALS department in the hospital where you are being seen.

I can see you have joined our bladder cancer forum; some people look for more information about cancer during this time. Searching for information can help you feel more in control while you wait for your results. But this is not always helpful.

If you do wish to look for information, please avoid searching Google and stay on sites such as ours and Cancer Research UK.

I hope this information has been useful, please contact us whenever we can help.

Take care.

Liz

Cancer Information Nurse Specialist 

You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email. Ref LZD/ FP

Disclaimer

Cystscopy