My husband was taking oral chemo (inlyta) for 5 weeks for kidney cancer tumours between his heart and lungs and then had a devastating neurological event. It was initially diagnosed as stroke, then treated as encephalitis, then lumbar puncture and MRI results eventually were clear and, by that time, he had made a fairly good recovery so was discharged from hospital. The oral chemo was stopped straight away after the event and as a consequence, he feels a lot better in himself physically. I am noticing cognitive impacts of the event however (more than the 'chemo brain' which was evident before).
Immunotherapy has been suspended along with the inlyta until we see the oncologist next month. In the meantime, I feel cast adrift. The tumours were shrinking with the treatment (one of the emergency scans showed this) but the treatment has stopped now. What might happen next?
