Hi,
This is my first post on any website forum of any kind so please bear with me
My journey is only just about to start but I am already stuck and feeling very isolated.
In March 2023 I took a PSA test that came back at 4.3. I understood PSA tests weren’t reliable so I remarked; what about an MRI scan. I had an mpMRI not realising I was to be part of a study (Translate) that I had not been informed about. I was not happy with this and did not agree to be part of. when I got the results that showed a low signal intensity lesion that qualified as PIRADS 3. And I was to be booked in for a biopsy.
I had no knowledge of prostate biopsy procedures until I was given the leaflets on that day. Safe to say head went into a state of shock and panic, I was nowhere near ready for that nor properly informed . So prevaricated while desperately trying to gain more information from the internet including all the big charities but nothing really helped, only basic information. Even some staff from the Urology clinic not were not at all empathetic and I was feeling real pressure.
I did not see a consultant until I had requested a second opinion. But this was still with the same consultant, we agreed to a second MRI for comparison but it wasn’t the same mpMRI scan that took at least 45 minutes and used contrast dye. This time it was in a mobile unit and took less than 15 and no dye! I didn’t even have to take my jeans off, just pull them down over my knees inside the scanner? Next minute I’m in the car park.! 6 or 7 weeks later he called said it has now gone to PIRADS 4 ! Again shocked, call only lasted a few minutes, and most of it went in one ear and out the other. How can that be? Just didn’t feel right. Now too embarrassed to question again.
Now one year on and back where I started with the same people.
I think I have run out of options. I go ahead with the biopsy not happy about it, or go private and start all over again.
Why don’t they show you your scan, I’m naturally very good at seeing fine detail in things; it’s an ability I used in my work.
I think I have lost faith in system particularly as it started badly. Now I’m worried about the time that’s passed.
Incidentally we lost our thirteen year old dog to liver cancer in December, 14 months after having major surgery to remove part of her liver. She was my best friend and this has hit me hard. I also lost a sister to cancer over 40 years ago age 23 she passed within 6 months of being diagnosed. That was truly devastating !. You never forget ! This obviously has affected how I see things.
previous PSA results 3.8 in December 2022. Current 4.1 February 2024
Better give you my age 68 years young.
TODAY! I find you hopefully a ray of hope! I don’t know where to turn. I just need to be properly informed , likely more than most, from people with ( EMPATHY) who I have total trust in.
Kind regards
Peewit
