Recovering from a full thyroidectomy and right side neck dissection

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Hello, I am recovering from a full thyroidectomy and right side neck dissection. I was in hospital for a week after my surgery due to sever low calcium. I was on a 12 hour calcium drip for 5/7 of my nights in hospital.  I have been home from hospital for 6 days and have been prescribed 8 calcichews a day, levothyroxine along with numerous other medications that goes along with this. I was hoping members of this group can shed some light on their experience of low calcium. When I was in hospital on the drip I would always feel sick and occasionally throw up, I was on daily anti-sickness medication which I am continuing now. I was wondering for those of you who have experienced this does the feeling of nausea ever goes away? As soon as I wake up I feel nauseous. 

Another topic I would like to discuss is feeling uncomfortable when swallowing and general stiffness of the neck. My cancer had spread a lot more from what the scans showed. Initially I went in for a full thyroidectomy and right side neck dissection of levels 2-5b, I ended up needing level 1-7 neck dissection which is a massive difference. When I talk and swallow I feel as if there is someone lightly strangling me. There is no extra swelling or sign of infection around the scar area. I did have a massive operation they removed 40 lymph nodes including my full thyroid, so understand it could just be due healing, please let me know if anyone else has experienced this sort of pain or if there is any cause for concern.

  • Hi Snowyseal,

    Thanks for getting in touch and welcome to our online community. I can see you are a member of one of our forums, we hope you find that this supportive.

    My name is Paula and I am one of the Cancer Information Nurse Specialists on the Macmillan Support LineIt is important to inform your consultant or cancer nurse specialist regarding these issues.

    We are sorry to hear you have been going through such a tough time following your thyroid cancer diagnosis and surgery and now experiencing pain and nausea. It is normal to have some pain and stiffness after your operation, however, if you contact your team so that they can assess you and help find the right pain relief for you. With any new worse or change in symptoms it is always important to let your team know so that they can clinically assess you and help to manage any symptoms that you are experiencing.  

    Some cancer treatments can cause low calcium levels in the blood. This is called hypocalcaemia. Calcium is an important nutrient that our bodies need to keep us healthy.  Calcium helps to build and keep our bones and teeth healthy, helps our blood clot, regulates the normal functioning of our brain and spinal cord and keeps our muscles working properly. Normal levels of calcium in the blood are between 2.1 mmol per litre and 2.6 but can vary a little from person to person.  

    There are 3 hormones in the body that play an important role in keeping the correct balance of calcium in the blood. This includes the parathyroid hormone (PTH), calcitonin and Vitamin D.  A low level of calcium is rare in people with cancer. The main causes of low level calcium in the blood include the removal of your parathyroid glands or damage to them when having surgery to the head or neck area, some medicines or a Vitamin D deficiency.

    Talk to your team regarding the stiffness in your neck and explain the sensation you described when talking and swallowing so they can give you some gentle exercises which can help you to be able to move your neck and shoulder as freely as you could before within a few weeks of surgery if this is appropriate to do so. As you said, you have had a big operation and your body is healing which does take time, but your team need to know that you are having some symptoms which they can help you with to manage. Hope this helps.

    Best wishes and take care,

    Paula (Cancer Information Nurse Specialist)

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email or webchat.

     

    Ref: PL/GMcR 

  • Hello Paula,

    Thank you for your speedy response. I am very grateful for your advice and I will speak to my team about everything mentioned and see what they come up with.

    Hope you have a lovely weekend and thanks again.