Long term/permanent radiotherapy effects

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Hello,

I was hoping that you could offer me some advice please?

My mother was diagnosed with stage 3 laryngeal cancer in early 2023 and it was successfully treated with a course of radiotherapy. 

One of the main side effects that she has really struggled with is the increased mucus in her throat. The advice that she was given to deal with this has included using a nebuliser, carbonated drinks, increased attempts to eat (rather than relying on fortisip drinks) and reduction in smoking. I appreciate that the smoking is far from ideal but she is a recovering alcoholic with depression so this is a vice that she finds very difficult to give up. She has also tried hyoscine patches.

The mucus has remained a constant issue and she complains that whenever she eats, food tastes rancid once it comes into contact with the mucus. A recent xray confirmed that food is getting stuck in the mucus when she eats but can be flushed down with water.

At her last oncology review, she was told that the mucus is unlikely to ever improve now as it normally improves the most in the first 12 months following treatment. She was absolutely devastated to hear this as the mucus is what makes her so miserable. At the end of last year, her depression hit an all time low because of this and she attempted suicide twice which resulted in her being sectioned under the mental health act. My brother and I have been caring for her and have got her back to a reasonable state of health but I am worried now about how she will handle this news.

So, I wanted to ask if there is anything else that you think we can/should try? She has the funds to seek a second opinion privately but is there any point? Could there be something available to her privately to help with the mucus which she may not have offered to her on the NHS? The care that she has been given at her local hospital has been fantastic but I worry now that if she has been told that there is nothing else to be done about the mucus, what impact this will have on her mental health. I just want to make sure that all options have been exhausted. 

Thank you in advance for your time.

Kay

  

   

  • Hi Kay44,

    Thanks for getting in touch. My name is Jo and I’m one of the Cancer Information Nurses on the Macmillan Support Line.

    It is good to hear that your mother’s laryngeal cancer has been successfully treated with a course of radiotherapy. However, I am sorry to hear that she is struggling with increased mucus in her throat and that this is impacting on her mental health. This sounds like a difficult time for you all and it’s good that you have reached out for advice and support.

    Side-effects of radiotherapy for laryngeal cancer are not uncommon, including thick saliva (mucus). However it is important that your mother gets the help and support that she needs to manage this.

    I wonder whether your mother’s hospital team can refer her to be assessed by a speech and language therapist. You could also ask about a referral to a long-term and late effects clinic.

    I see that you have joined the head and neck cancer forum on our online community, and hope you are finding this supportive. There is further information and support available through the charities Head & Neck Cancer UK (HANCUK) and The Swallows.

    It can be challenging supporting someone close to you with cancer. There are a number of ways that we here at Macmillan can offer help and support to you, your brother and your mother, so please do get back in touch

    If you have any further questions, please don’t hesitate to get back in touch. You can speak with the Macmillan Support Line on 0808 808 0000 (7 days a week, 8am-8pm) or email us.

     

    I hope this information is helpful.

    Best wishes,

    Jo

    Cancer Information Nurse Specialist

    Ref: JD/KS

     

     

  • Hi Jo,

    Thank you for getting back to me and for the advice. 

    I will look into what you have suggested.

    Thanks again.

    Kay.