I has APR surgery at the end of 2022. Unfortunately I developed a perineal hernia confirmed by CT scan which revealed the biological mesh used to replace the supporting muscle had failed and the bowel has descended. This is incredibly uncomfortable and makes sitting very difficult and driving even more so. From being very fit and walking everywhere I am now finding it very difficult to walk even the shortest distance. I have waited from September when my original surgeon said they did not have the expertise to repair this and I would need to see a plastic surgeon at another hospital and referred me.
I had my first “urgent” appointment in December cancelled until January. I saw 3 consultants but was supposed to see 4. I now have another appointment next week to see the surgeon who was absent. I have now been struggling with this for 8 months. I am so worried about having another major surgery. I did everything possible to recover well from my original surgery, but being unable to keep fit now don’t feel very positive about how I will recover this time. The longer I wait for surgery the more unfit I am becoming i am now 67 but was told by the surgeons secretary when she called to make next weeks appointment that I am likely to wait a year for surgery.
As I am also a carer for my disabled son who has had to move an hours drive from me (he has 2-1 care 24 hours a day) but am finding it so hard to support him. He is autistic and finding it really difficult to get used to his new staff so needs me more than ever. I have also had to cope with all the stuff involved with his move and finding this overwhelming, benefit changes, the change from residential care to him being In supported living which means far more work for me. I’m feeling so overwhelmed by all of this plus the prospect of surgery and not sure where I can get help and advice. Sorry this all sounds rather hopeless but any advice you can offer would help I’m sure. Many thanks Sue
