CA125

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I had surgery (tubes and ovaries removed) and Chemo which finished               
in Jan 2023.

At the time of surgery it was thought that I had a cyst, My surgeon said               
that after I had finished chemo I should have a hysterectomy after cancer.                           .                                 was found in both 
was found in both ovaries, stage 1b/c.
What was to be keyhole surgery turned in to major open surgery because            
of adhesions, blood loss etc. 

Following the chemo my surgeon decided that it would be a big risk if I        
had further surgery and decided not to do any more.

My CA 125 went down to 40 following chemo. It has been increasing since      
48, 58 and last week 68. I’m waiting for an appointment for a CT scan.    
     
I am worried and afraid cancer is back and maybe I should have the second        
surgery after all. Could you give me any guidance.

 Thanks 

Mary

  • Hi Mary

    Thanks for getting in touch, my name is Sarah one of the nurses on the Macmillan support line.

    It sounds like you have been through a difficult time with unplanned major surgery last year and having to make decisions about treatment.

    Monitoring CA125 after treatment is part of your follow up to monitor for possible signs of cancer. It is natural to feel worried and afraid that the cancer has come back when these levels begin to rise.

    As we do not have access to your NHS notes, it is difficult to understand why your CA125 has been rising. Once you have had a scan, your team will know a bit more, explain your results and what happens next.

    At this time, it can be helpful to write questions down. This helps focus on what you can control rather than the uncertainty that you feel.

    Waiting for tests and results is an understandably worrying time. Macmillan offers free counselling through BUPA. You can read about this on our website and book an appointment yourself or one of the team on the support line can do that for you.

    Reaching out for support is important, whether with friends and family or through our online community. You can also call through to speak with one of our nurses or emotional support team on 0808 808 0000.

    I hope this information helps. Please feel free to get back in touch if you want more information or support.

    Best wishes,

    Sarah

    Cancer Information Nurse Specialist 

    You can also speak with the Macmillan Support Line team of experts. Phone free on 0808 808 0000 (7 days a week, 8am-8pm) or send us an email

    Ref/ SS/PW

    Sarah S-Macmillan Cancer Information Nurse Specialist
  • Hi Sarah

    Thanks for coming back to me. I will as you suggested write my questions down and see what happens after the CT scan. I have a very good oncologist and I will chat with him too.

    Thanks

    Mary